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sulthana shaik's Discussions (3)

Discussions Started (3) Replies Latest Activity

Exon 45 skipping/ exon 51 skipping, Help to make a hard decision !!.PLEASE HELP.

Hi We are planning to participate in exon 45 skipping trail, for our 12 year old son. Is any one already enrolled in the exon skipping  tr…

Started by sulthana shaik in Research

0 on Wednesday

Need special needs stroller

Hi , Our son Was diagnosed with duchenne muscular dystrophy around 5 years of age. Now he is 12 years old. We are struggling with our insur…

Started by sulthana shaik in Accessibility and Disability Issues

0 Jul 16

Answering questions from strangers

Hi My son is 10 years old with Duchenne . He has learning disability as well. He has a very short statute. I am in a very uneasy situation…

Started by sulthana shaik in Social Issues

2 Feb 8, 2016
Reply by Andrea Cleary

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