Deb Robins's Discussions (34)

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Discussions Replied To (18) Replies Latest Activity

"Perhaps a bad choice of words on my part - but I agree totally that our advocacy has…"

Deb Robins replied Jun 13, 2014 to PTC gets EU approval

 27 Jun 14, 2014
Reply by David

"Perhaps they have less data on non-ambulatory and intend to confirm the observable b…"

Deb Robins replied Jun 12, 2014 to PTC gets EU approval

 27 Jun 14, 2014
Reply by David

"I am always astounded to meet youths who have no heart meds. I want to share my son'…"

Deb Robins replied Oct 14, 2012 to Cardiac Care

 2 Oct 14, 2012
Reply by lisa burke

"I do see where you're coming from as I've been doing the same thing for 20 years...b…"

Deb Robins replied Jun 29, 2012 to Stem cell regulatory change in Texas, USA - real?

 22 Aug 9, 2012
Reply by Galia Ben Ishay

"Surely the bottom line is efficacy - where is the peer reviewed proof from properly…"

Deb Robins replied Jun 28, 2012 to Stem cell regulatory change in Texas, USA - real?

 22 Aug 9, 2012
Reply by Galia Ben Ishay

"Good doco Keith. I'll use it. My community had a small local boy (not with DMD) but…"

Deb Robins replied Jun 27, 2012 to Stem cell regulatory change in Texas, USA - real?

 22 Aug 9, 2012
Reply by Galia Ben Ishay

"The video would be very handy thank you as it would save length if if didn't have to…"

Deb Robins replied Oct 22, 2011 to Ways to setup a NIV system

 7 Oct 22, 2011
Reply by Deb Robins

"We are looking at diurnal NIV soon. I saw a black cover for this snap-loc. Do you ha…"

Deb Robins replied Oct 21, 2011 to Ways to setup a NIV system

 7 Oct 22, 2011
Reply by Deb Robins

"Too right! So do I. Once upon a time, didn't medicos nickname pneumonia the invalid'…"

Deb Robins replied Apr 27, 2010 to Why is Duchenne not included in inherited Cardiomyopathy

 4 Apr 27, 2010
Reply by Tulika

"I agree with you about the relatedness of Duchenne to Cardiomyopathy because if you…"

Deb Robins replied Apr 26, 2010 to Why is Duchenne not included in inherited Cardiomyopathy

 4 Apr 27, 2010
Reply by Tulika

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