Andrea Cleary's Discussions (216)

Search Discussions

View

Discussions Replied To (205) Replies Latest Activity

"Have heard of several boys being diagnosed in a similar story to yours. Simon met al…"

Andrea Cleary replied Dec 19, 2016 to Large in frame deletion of exon 3 to 29

 7 Apr 13, 2017
Reply by ANTONINO ENEIDE

"Try to get to one of the DMD specialists (you are probably seeing one in Columbus),…"

Andrea Cleary replied Dec 17, 2016 to Large in frame deletion of exon 3 to 29

 7 Apr 13, 2017
Reply by ANTONINO ENEIDE

"Would he be able to share housing and personal care attendants with another young gu…"

Andrea Cleary replied Dec 16, 2016 to Where do adult DMD guys live independently??????

 1 Dec 16, 2016
Reply by Andrea Cleary

"Hi Shaynee, welcome to the group that no one wishes they had to be a member of. Perh…"

Andrea Cleary replied Dec 16, 2016 to Large in frame deletion of exon 3 to 29

 7 Apr 13, 2017
Reply by ANTONINO ENEIDE

"As should the one for Biomarin's Drisapersen before it. http://www.youtube.com/watc…"

Andrea Cleary replied May 15, 2016 to Sarepta Advisory Committee Vote Should Be Treated Like A Mistrial

 1 May 15, 2016
Reply by Andrea Cleary

"Send your email to: PCNS@fda.hhs.gov Email subject line: Written testimony submissio…"

Andrea Cleary replied Apr 6, 2016 to The FDA and Ataluren (Translarna)

 36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"Jay, You can see the videos of my son, a 15.75 yr old Drisapersen participant, on my…"

Andrea Cleary replied Apr 6, 2016 to The FDA and Ataluren (Translarna)

 36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"The Drisapersen refusal by the FDA is a similar story. If you've seen the videos of…"

Andrea Cleary replied Apr 5, 2016 to The FDA and Ataluren (Translarna)

 36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"You can just say he is smaller than his peers due to steroid use for a chronic disea…"

Andrea Cleary replied Feb 8, 2016 to Answering questions from strangers

 2 Feb 8, 2016
Reply by Andrea Cleary

"We need to keep fighting as a community to get these drugs approved, for the next ch…"

Andrea Cleary replied Jan 7, 2016 to Petition in support of Drisapersen and thus other drugs to fight DMD

 4 Jan 7, 2016
Reply by Andrea Cleary

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

Terms of Service

© 2023   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service