Tina's Discussions (127)

Discussions Replied To (116) Replies Latest Activity

"I think the key to preventing bed sores and tail bone pain from happening is to turn…"

Tina replied May 30, 2009 to Continually sore????

2 May 30, 2009
Reply by Mark Whiteley

"Any idea where in the states will the trials will be scheduled?"

Tina replied May 20, 2009 to Santhera's SNT-MC17/Idebenone

9 May 20, 2009
Reply by Tina

"Wow, all it took was one mom and one scientist. Amazing! Their hard efforts and det…"

Tina replied May 11, 2009 to Dr. Brian Tseng and Jett Foundation

3 Jun 1, 2009
Reply by Ofelia Marin

"Thanks Chrisitine! You guys are doing some great things up there for this generatio…"

Tina replied May 7, 2009 to Jettride documentary

6 May 7, 2009
Reply by Tina

"The wierdest thing happened the other night. Mark, our 8-year old was lying on my be…"

Tina replied Apr 12, 2009 to Dealing with son's sadness about being different

30 Nov 25, 2009
Reply by Donna Gluck

"Kim, I would think the stander type would help preserve your back more with the tran…"

Tina replied Apr 7, 2009 to Wheelchairs - Pro's & Con's of Standers

8 Apr 11, 2009
Reply by Cheri Gunvalson

"Mindy, I too was upset with the press coverage. The Foundation to Eradicate Duchenne…"

Tina replied Mar 27, 2009 to MDA

41 Sep 21, 2009
Reply by Wyatt's Mommy, Melissa

"Why don't you explain your circumstances to the Neurologist and ask him to try your…"

Tina replied Mar 10, 2009 to Dosage for Deflazacort

3 Mar 10, 2009
Reply by Jennifer Shumsky

"I'm glad to read someone from a MDA clinic is recommending Idebenone, and for a 2 ye…"

Tina replied Feb 25, 2009 to Idebenone

10 Feb 25, 2009
Reply by Kelvinsmom - Michelle

"I'm sending a big hug to you. Mark and Adam are basically the same age. They are tr…"

Tina replied Feb 23, 2009 to Dealing with son's sadness about being different

30 Nov 25, 2009
Reply by Donna Gluck

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