Shelly's Discussions (32)

Discussions Replied To (30) Replies Latest Activity

"Yes it does have the potential to treat all the boys with any gene mutation !"

Shelly replied Oct 31, 2016 to Any new drugs expected next 3-5 years?

7 Nov 2, 2016
Reply by Steven

"Fighters always win!!!! God bless !!!"

Shelly replied Jul 9, 2016 to Anyone with DMD break femur bone???

1 Jul 9, 2016
Reply by Shelly

"It's really sad to know that the hard work of boys and families went in vain. I don'…"

Shelly replied May 31, 2016 to BioMarin Announces Withdrawal of Market Authorization

3 Jun 1, 2016
Reply by Jason Darienzo

"Fingers crossed!!!!"

Shelly replied Apr 29, 2016 to Sarepta Can Win Speedy FDA Drug Approval?

2 Apr 29, 2016
Reply by Jay Griffin

"Great news!!!!"

Shelly replied Apr 16, 2016 to NICE Recommends Translarna

5 Apr 16, 2016
Reply by Shelly

"Thanks Ryan!"

Shelly replied Apr 11, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"PPMD is working on our behalf. Let's see what FDA does on Eteplirsen!"

Shelly replied Apr 9, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"Hi Limca Really good to see everyone raising a voice. Expecting more responses. Than…"

Shelly replied Apr 7, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"Thanks Andrea!"

Shelly replied Apr 7, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"Time to wake up. Our whole community should unite to save our sons. These drugs, eve…"

Shelly replied Apr 5, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service