Jonathan's Discussions (47)

Discussions Replied To (40) Replies Latest Activity

"We actually went further than fosamax. Our son broke his tibia/fibia straight across…"

Jonathan replied Jun 25, 2014 to fosamax

1 Jun 25, 2014
Reply by Jonathan

"Children will react differently to these steroids (delfazacorte and prednisolone) an…"

Jonathan replied Oct 16, 2013 to Stopping deflazacort

26 Oct 27, 2013
Reply by Cathy Rozema

"Well we just did the 6 monthly repeat Deoxypyridinoline test and the results show th…"

Jonathan replied Sep 19, 2013 to Pamidronate therapy also known as Aredia

14 Sep 20, 2013
Reply by Janine

"Exon skipping can help those with point mutations, however it will depend on which e…"

Jonathan replied Jul 29, 2013 to Who benefits from exon skipping?

2 Jul 29, 2013
Reply by Jonathan

"Just an update! We went ahead with the infusion, which was changed to zalidronate at…"

Jonathan replied May 27, 2013 to Pamidronate therapy also known as Aredia

14 Sep 20, 2013
Reply by Janine

"Im in Australia in Brisbane, and we see our specialists at the Mater Hospital, or ot…"

Jonathan replied Apr 17, 2013 to Pamidronate therapy also known as Aredia

14 Sep 20, 2013
Reply by Janine

"We have been doing supplements for some time now with things like Vit D etc. We have…"

Jonathan replied Apr 17, 2013 to Pamidronate therapy also known as Aredia

14 Sep 20, 2013
Reply by Janine

"When we built our house we put in a shower that can be rolled in and out of. I dont…"

Jonathan replied Mar 7, 2013 to Bathroom Modifications - Do I really want/need a roll-in shower?

11 Jun 24, 2013
Reply by Matt Wallace

"I guess I didnt give all the information that I should have! Yes the 10%-15% range i…"

Jonathan replied Nov 21, 2012 to Gonadal Mosaic

17 Nov 21, 2012
Reply by Jonathan

"We went and saw a geneticist who told us of our chances were in having another child…"

Jonathan replied Nov 18, 2012 to Gonadal Mosaic

17 Nov 21, 2012
Reply by Jonathan

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