Eileen DeLong's Discussions (48)

Discussions Replied To (39) Replies Latest Activity

"Hi, Jared is now 19 and Calvin is 22 both still walking. Seeing Dr. Wong in November…"

Eileen DeLong replied Sep 13 to exons 3 - 7

26 Sep 13
Reply by Eileen DeLong

"Hi James, This is the link to the paper http://www.ncbi.nlm.nih.gov/pmc/articles/PMC…"

Eileen DeLong replied Jul 9, 2014 to exons 3 - 7

26 Sep 13
Reply by Eileen DeLong

"I think it depends on how happy you are with your current care. I did not feel we we…"

Eileen DeLong replied Jul 1, 2014 to exons 3 - 7

26 Sep 13
Reply by Eileen DeLong

"Genetically they are diagnosed as Duchenne. But the doctors refer to them as Outlier…"

Eileen DeLong replied Jun 20, 2014 to Should my son start steriods at 3 years old? Ducenne

8 Jun 20, 2014
Reply by Eileen DeLong

"Alissa, Do you know what deletion or duplication is in your family? We have deletion…"

Eileen DeLong replied Jun 19, 2014 to Should my son start steriods at 3 years old? Ducenne

8 Jun 20, 2014
Reply by Eileen DeLong

"Hi James, My boys and I have deletion of exon 3-7. Calvin is about to turn 18 and Ja…"

Eileen DeLong replied Apr 30, 2014 to exons 3 - 7

26 Sep 13
Reply by Eileen DeLong

"No it sadly does not skip, its just the luck of the draw. I wish I had know before I…"

Eileen DeLong replied Sep 10, 2012 to Muscular dystrophy- need help please!

10 Sep 22, 2012
Reply by ashley s

"DMD is carried by an X-linked recessive gene. Males have only one X chromosome, so o…"

Eileen DeLong replied Sep 10, 2012 to Muscular dystrophy- need help please!

10 Sep 22, 2012
Reply by ashley s

"We had biopsies taken for a study of our deletion sent to Dr.Steve Wilton in Austral…"

Eileen DeLong replied Jul 17, 2012 to DMD phenotype presenting as BMD phenotype

3 Jul 17, 2012
Reply by Eileen DeLong

"HI Andrew, My boy have a deletion of exon 3-7. They are 16 and 13 and still walking…"

Eileen DeLong replied Jul 10, 2012 to DMD phenotype presenting as BMD phenotype

3 Jul 17, 2012
Reply by Eileen DeLong

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