danielle's Discussions (45)

Discussions Replied To (36) Replies Latest Activity

"Hi my son was 4 when diagnosed with dmd. I know all of the worse case scenarios bc m…"

danielle replied Nov 29, 2015 to Son, 2, just got diagnosed 5 days ago. Need support!

34 Jan 14, 2016
Reply by Ginger Edwards

"My son is 10 and he stopped completely walking at 9. He's been confined to a wheelch…"

danielle replied Jun 29, 2015 to At What Age Did Your Child Stop Walking?

9 Jul 8, 2015
Reply by Karen Barnett

"I really have no idea I hadn't even thought about that. My son is already so weak he…"

danielle replied Jun 20, 2015 to spinal fusion surgery

4 Jun 20, 2015
Reply by danielle

"Hi I'm glad to hear it worked out for ur son. Jacobs lungs are already getting bad h…"

danielle replied Jun 20, 2015 to spinal fusion surgery

4 Jun 20, 2015
Reply by danielle

"In some cases these can be affected. My son is 10 and already has adult symptoms its…"

danielle replied May 6, 2015 to our boys and control in the bathroom

5 May 6, 2015
Reply by Michelle Scaglione

"He doesn't have a uti. He is actually losing control over bowel movements"

danielle replied May 6, 2015 to our boys and control in the bathroom

5 May 6, 2015
Reply by Michelle Scaglione

"i am so sorry to hear this it breaks my heart every time i read that a child passes…"

danielle replied Mar 23, 2015 to Jonah died today

25 Mar 23, 2015
Reply by danielle

"My son needs these things as well. his lung function is low so it is hard for him to…"

danielle replied Mar 23, 2015 to Cough Assist Devices

11 Mar 24, 2015
Reply by Andrea Cleary

"Ur welcome. These boys are very special and need to know how special they are and mu…"

danielle replied Feb 21, 2014 to Help with behaviour.

4 Apr 23, 2014
Reply by Tammy

"A lot of kids find it hard to verbalize how they are feeling so they act out. This i…"

danielle replied Feb 21, 2014 to Help with behaviour.

4 Apr 23, 2014
Reply by Tammy

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