Jay Griffin's Discussions (49)

Discussions Replied To (45) Replies Latest Activity

"I share the same feelings... It's totally frustrating..."

Jay Griffin replied Apr 4, 2016 to The FDA and Ataluren (Translarna)

36 Jul 28, 2016
Reply by Bernardo A. Iriberri

"Thanks... I had been trying different techniques to help stretch my son out"

Jay Griffin replied Mar 23, 2016 to Awesome technique for stretching!

30 Apr 12, 2016
Reply by Eddy Rivera

"Incredibly awesome... We will remain prayerful...."

Jay Griffin replied Mar 21, 2016 to Researcher: Muscular Dystrophy treatment for humans 2 years away

2 Mar 27, 2016
Reply by Eddy Rivera

"Nancyc.. I have similar concerns regarding my 6 yr old... Check your inbox"

Jay Griffin replied Mar 16, 2016 to Anxiety and Stress in Large Public Elementary School: How Much is Too Much? Have You Pulled Your Son From Mainstream School and Transferred Him to. Smaller, Alternative School? Advice appreciated.

19 Sep 23, 2016
Reply by Michelle Scaglione

"I am curious as well"

Jay Griffin replied Mar 11, 2016 to Sarepta Exon Skipping 45 amenable - limited or no ambulation dose titration study is recruiting

6 Mar 13, 2016
Reply by Shelly

"Brandi, we were recently diagnosed as well. Glad that you reached out to this group.…"

Jay Griffin replied Mar 10, 2016 to Hello

3 Apr 16, 2016
Reply by Nida Zuberi

"Fingers crossed"

Jay Griffin replied Mar 8, 2016 to Experts truly believe for the first time in history that a major breakthrough is likely in the next 5-10 years.

6 Mar 8, 2016
Reply by Jay Griffin

"Very promising. That video was published in 2013.. We are on the cusp..We need to pl…"

Jay Griffin replied Mar 8, 2016 to Experts truly believe for the first time in history that a major breakthrough is likely in the next 5-10 years.

6 Mar 8, 2016
Reply by Jay Griffin

"Azucena, I am glad that it is working... Can you provide details? "

Jay Griffin replied Mar 2, 2016 to Ataluren

3 Sep 18, 2017
Reply by Antonio Castro

"Limca, did you find out if US kids could participate in the trial?"

Jay Griffin replied Feb 27, 2016 to CRISPR

7 Mar 6, 2016
Reply by Limca Jhaveri

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