Donna's Discussions (87)

Discussions Replied To (71) Replies Latest Activity

"Hi all,  follow up here.  Kyle just had his semi annual check up at the University o…"

Donna replied Oct 11, 2013 to Ataluren

21 Oct 11, 2013
Reply by Joanne Wechsler

"I believe the CPK level will be reported again at part of the DNA testing.  Our son…"

Donna replied Oct 1, 2013 to Should we have cpk retested before DNA testing?

6 Dec 9, 2013
Reply by Frankie Butler

"We order through Masters Marketing (UK I believe) and never have had issues.  I've a…"

Donna replied Oct 1, 2013 to deflazacort

6 Oct 2, 2013
Reply by Rhonda

"My son has been in the Ataluren since the beginning and continues on it.  He's doing…"

Donna replied Aug 23, 2013 to Ataluren - phase III

8 Sep 10, 2014
Reply by Trinh Nguyen

"Bob,  I am so sorry for your loss and yes at a such a young age.  There's been too m…"

Donna replied Jul 10, 2013 to Jonah died today

25 Mar 23, 2015
Reply by danielle

"It's in Chicago next year ????  That is WONDERFUL news - finally I'll be there - i'm…"

Donna replied Jul 3, 2013 to 2014 Conference

1 Jul 3, 2013
Reply by Donna

"We see Dr. Katherine Matthew's in the Neuromuscular Pediatric Speciality Clinic in t…"

Donna replied Apr 10, 2013 to Hospital / Medical Center for Duchenne in USA

9 Jan 26, 2015
Reply by Trinh Nguyen

"My son takes two gummy L'il Critters Vitamin D's per day.  (sorry, don't know what d…"

Donna replied Feb 26, 2013 to The Dose for Vitamin D in Steroid Users

7 Apr 15, 2013
Reply by Tammy

"One of the reasons we went with Deflazacort was to avoid the temper issues that is m…"

Donna replied Oct 31, 2012 to deflazacort and temperment advice please

11 Jan 21, 2014
Reply by nathasha dubarry

"I'm not sure what those results are in our specific case but ataluren is considered…"

Donna replied Oct 8, 2012 to Ataluren

21 Oct 11, 2013
Reply by Joanne Wechsler


Need help using this community site? Visit Ning's Help Page.



© 2022   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service