Michelle Scaglione's Discussions (54)

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Discussions Replied To (51) Replies Latest Activity

"Truthfully it doesnt matter anymore whether Johnny received the Ataluren.  For him i…"

Michelle Scaglione replied Dec 14, 2011 to Ataluren update

 18 Dec 14, 2011
Reply by Michelle Scaglione

"Bob I believe I have been waiting on Ataluren since 2004.  It has been a long wait w…"

Michelle Scaglione replied Dec 6, 2011 to Ataluren update

 18 Dec 14, 2011
Reply by Michelle Scaglione

"Tamara Im sorry to hear that.  Duchenne is slowly killing our sons and we get to sad…"

Michelle Scaglione replied Dec 5, 2011 to Ataluren update

 18 Dec 14, 2011
Reply by Michelle Scaglione

"Well said Berit.  My son missed 2 chances and now is 19 and I can see his decline in…"

Michelle Scaglione replied Dec 4, 2011 to Ataluren update

 18 Dec 14, 2011
Reply by Michelle Scaglione

"When Johnnys was approved we informed them he needed it to be independent in reachin…"

Michelle Scaglione replied Dec 3, 2011 to Getting Elevation Approved on a power wheelchair

 7 Dec 5, 2011
Reply by Janine

"Thank you.  I will first call his dr. Michelle "

Michelle Scaglione replied Oct 24, 2011 to CoQ10

 5 Oct 25, 2011
Reply by Jacobs Mommom

"He's on Carvedilol. "

Michelle Scaglione replied Oct 23, 2011 to CoQ10

 5 Oct 25, 2011
Reply by Jacobs Mommom

"It sounds like you need a new dr.    "

Michelle Scaglione replied Jun 9, 2011 to Age for wheelchair

 14 Mar 1, 2012
Reply by Jennifer

"Hi We have the Pro Bed that was featured at the PPMD conference in 2009.  It turns m…"

Michelle Scaglione replied Feb 28, 2011 to night time care

 2 Feb 28, 2011
Reply by Michelle Scaglione

"Ian   I just ordered your book.  I look forward to reading it.  my son who is 18 isn…"

Michelle Scaglione replied Feb 19, 2011 to My Book

 6 Mar 21, 2012
Reply by Sherri Hadley

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