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Michael Piacentino's Discussions (35)

Discussions Replied To (31) Replies Latest Activity

"Hello Michelle - sorry about your son, this DMD club is hard sometimes. Some suggest…"

Michael Piacentino replied Mar 10, 2014 to how do you deal with everyday life moving your kid from a place to another ?

5 Mar 10, 2014
Reply by Michael Piacentino

"Bernardo -  I have some mixed emotions on this. My son is now 20. When I first heard…"

Michael Piacentino replied Feb 17, 2014 to Ataluren Webinar

45 Feb 17, 2014
Reply by Peter

"Too true. My wife has invested a bushel of hours educating some in the medical commu…"

Michael Piacentino replied Jan 18, 2014 to Deflazacort Dosage

7 Jan 19, 2014
Reply by Andrea Cleary

"Hi Wendy, Andrew is right, though as kids grow and get older they will reach a max/d…"

Michael Piacentino replied Jan 12, 2014 to Deflazacort Dosage

7 Jan 19, 2014
Reply by Andrea Cleary

"Hi Amit, the last  dexascan for Jon was in 2009 and it looked good. As I recall, the…"

Michael Piacentino replied Jan 11, 2014 to Growth Hormone

19 Jan 14, 2014
Reply by Joy Narmore

"We use those "fleece" sweat pants, have to get them tailored, to match waist to leng…"

Michael Piacentino replied Jan 10, 2014 to Pants for boys in wheelchairs

11 Jan 14, 2014
Reply by Mandy

"Try asking first from the local company that provided the wheel chair, else find a d…"

Michael Piacentino replied Jan 9, 2014 to Arm pads for wheelchairs?

3 Jan 12, 2014
Reply by Keith Van Houten

"Yep, your likely correct Amit.The multidisciplinary Goblins at Cinci., have a good h…"

Michael Piacentino replied Jan 9, 2014 to Growth Hormone

19 Jan 14, 2014
Reply by Joy Narmore

"Hello Amit - my son is in the ongoing  Ataluren study dealing with stop codons.  In…"

Michael Piacentino replied Jan 8, 2014 to Growth Hormone

19 Jan 14, 2014
Reply by Joy Narmore

"Yes, absolutely correct. HGH yields no benefits in fighting DMD. Rather is is a pres…"

Michael Piacentino replied Jan 4, 2014 to Growth Hormone

19 Jan 14, 2014
Reply by Joy Narmore

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