Karen's Discussions (110)

Discussions Replied To (102) Replies Latest Activity

"I would like to know some non-ambulatory end points for clinical trials.  The inclus…"

Karen replied Apr 8, 2014 to Propose research that is important to you

11 Jul 1, 2014
Reply by Michele

"I see that you have chosen not to use deflazacort.  Have you tried it?  I ask becaus…"

Karen replied Sep 28, 2011 to Whether or not to go for Stem Cell treatment

3 Sep 28, 2011
Reply by Keith Van Houten

"Hi We built an accessable house about 5 years ago.  So far, so good.  The things I l…"

Karen replied Sep 3, 2011 to Home modification suggestions

18 Apr 2, 2012
Reply by Loretta Memmay

"This also sounds a bit like the suppression of Myostatin that allows muscles to get…"

Karen replied Jul 18, 2011 to Anyone know much about this?

5 Jul 18, 2011
Reply by Donna Skibo

"Hi Amit   I would suggest that you e-mail PPMD and ask for a copy of the Connect 201…"

Karen replied Jul 18, 2011 to Conference outcomes

16 Jul 26, 2011
Reply by Ofelia Marin

"Hi Most states have a 3-5 year old program that includes preschool.  My son particip…"

Karen replied Apr 2, 2011 to Getting the school district to cover services before kindergarten

5 Nov 9, 2011
Reply by Wyatt's Mommy, Melissa

"Hi Char   I am thinking that they want to start out with no steroids so that they ca…"

Karen replied Mar 16, 2011 to What are non exon skipping/PTC parents following for research?

7 Mar 16, 2011
Reply by Karen

"Hi   We went way down on prednisone to allow a persistent wound to heal.  Basically…"

Karen replied Mar 4, 2011 to Stopping/Restarting of Steroids

8 Mar 7, 2011
Reply by amit gupta

"Hi Mandy   Karen from Burlington here.  My son started having diareah (sp) with bloo…"

Karen replied Mar 1, 2011 to Bloody stools and colonoscopy

6 Mar 1, 2011
Reply by Karen

"Dr. Lee Sweeney, Dr. Mendel at OSU, Dr. Chamberlain U of Washington. Senators who he…"

Karen replied Jun 23, 2010 to HONOREE? Who is an outstanding individual in the Duchenne community?

6 Jun 25, 2010
Reply by cheryl cliff


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