Susana Arroyo's Discussions (91)

Discussions Replied To (71) Replies Latest Activity

"Awesome! :)"

Susana Arroyo replied Jun 29, 2013 to Drisapersen given breakthrough therapy status

1 Jun 29, 2013
Reply by Susana Arroyo

"It doesn't seem you son is at that point though. My Ejection Fraction was extremely…"

Susana Arroyo replied Jun 19, 2013 to Heart Concerns

4 Jun 19, 2013
Reply by Susana Arroyo

"Of Course Trisha. I'm sure it is something he can do! :) I got my van about 3 years…"

Susana Arroyo replied Jun 19, 2013 to Driving

6 Jun 19, 2013
Reply by Susana Arroyo

"I am a manifesting carrier of Duchenne.meaning that even though I am female, I still…"

Susana Arroyo replied Jun 19, 2013 to Heart Concerns

4 Jun 19, 2013
Reply by Susana Arroyo

"Hello Trisha, have they suggested a pacemaker or defibrillator at all? "

Susana Arroyo replied Jun 9, 2013 to Heart Concerns

4 Jun 19, 2013
Reply by Susana Arroyo

"Hello Trisha, I am a girl with Duchenne and will be 24 in August. I got my permit at…"

Susana Arroyo replied Jun 9, 2013 to Driving

6 Jun 19, 2013
Reply by Susana Arroyo

"Does anyone know how we can get ahold of tammy? I have some questions for her."

Susana Arroyo replied Oct 20, 2011 to Heart Transplant update

8 Nov 15, 2011
Reply by Ariel Adler

"Thanks for sharing! that is awesome!"

Susana Arroyo replied Jul 17, 2010 to exoskeleton

4 Jul 17, 2010
Reply by Keith Van Houten

"I got mine today! so far so good! ;)"

Susana Arroyo replied Nov 3, 2009 to H1N1 Issues?

21 Nov 10, 2009
Reply by Susan Rathfelder

"Thanks for all the replies everyone!"

Susana Arroyo replied Nov 2, 2009 to Has anyone gotten their h1n1 vaccine yet?

8 Nov 19, 2009
Reply by Melissa Geary

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