Denise Bretsik's Discussions (22)

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Discussions Replied To (19) Replies Latest Activity

"Evan is 7 years old/8 next month and about 58 lbs. Do you think starting him at 500…"

Denise Bretsik replied Jan 24, 2013 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Hello, We have decided to start Evan on idebenone and received the rx. He is startin…"

Denise Bretsik replied Jan 23, 2013 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Thank you for all the information. Evan has an appointment and I am going to talk to…"

Denise Bretsik replied Nov 28, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Hello, My son was recently diagnosed. I am looking for anything that may help. Can…"

Denise Bretsik replied Nov 13, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Previously, the California-based biotechnology company BioMarin Pharmaceutical had t…"

Denise Bretsik replied Oct 16, 2012 to Summit SMT C1100

 49 Sep 5, 2013
Reply by paul roberts

"David, I would love to do the same. I didn't see it when I looked under the donate t…"

Denise Bretsik replied Oct 15, 2012 to Summit SMT C1100

 49 Sep 5, 2013
Reply by paul roberts

"one more thing, I saw on one of your post about Preston's leg locking up. The same t…"

Denise Bretsik replied Oct 6, 2012 to Exon 44 Deletion

 23 Feb 13, 2017
Reply by Sai Chand. Gurujala

"Hello,   My 7 year old son has the exon 44 deletion. He was diagnosed this past May.…"

Denise Bretsik replied Oct 6, 2012 to Exon 44 Deletion

 23 Feb 13, 2017
Reply by Sai Chand. Gurujala

"So what is the next step? Do they have to run another trial with more children or do…"

Denise Bretsik replied Oct 6, 2012 to Conference Call 48-Week Results From the Phase IIb exon 51 skip DMD Study

 21 Oct 7, 2012
Reply by Gonzalo Monteverde

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