Nadja's Discussions (40)

Discussions Replied To (34) Replies Latest Activity

"I am intrested too.i saw i can Order it in the internet"

Nadja replied Nov 17, 2015 to epicatechin and Duchenne

34 Jan 23, 2016
Reply by Steven

"How does translarna work?"

Nadja replied May 18, 2015 to What is the cost of translarna?

13 Apr 22, 2016
Reply by Peter

"Hi dalibor,i give my son idebenone from kirkmann i think since may 2014.in the First…"

Nadja replied Feb 28, 2015 to Idebenone

4 Feb 1, 2016
Reply by Kathleen

"How much idebenone should i give?!?max is four and i give him 300 mg in the Morning!…"

Nadja replied Aug 5, 2014 to What Shouid I Use, Idebenone or COQ10?!!!

7 Aug 5, 2014
Reply by Nadja

"In Germany we get it from a international pharmacy,it is from kirkmann. My son gets…"

Nadja replied Aug 2, 2014 to What Shouid I Use, Idebenone or COQ10?!!!

7 Aug 5, 2014
Reply by Nadja

"What is about to give idebenone and coq10?!"

Nadja replied Aug 2, 2014 to What Shouid I Use, Idebenone or COQ10?!!!

7 Aug 5, 2014
Reply by Nadja

"Hi!can you speak German? At monday i am in have an appointment in the biggest neurol…"

Nadja replied Jul 31, 2014 to idebenone and dark urine

4 Aug 1, 2014
Reply by Moein

"Hi marija,our son takes idebenone since 8 weeks,300mg per day.at the first times the…"

Nadja replied Jul 31, 2014 to idebenone and dark urine

4 Aug 1, 2014
Reply by Moein

"Oh my god!!!!!great news!!!!"

Nadja replied May 21, 2014 to No News About SMT C 1100!!!!!!!!!!!!

41 May 21, 2014
Reply by Michelle Scaglione

"Hi moein.my son has deletion 3-48 it is inframe but the doctors think it is duchenne…"

Nadja replied Apr 30, 2014 to Deletion 8-41

3 Apr 30, 2014
Reply by Moein

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