tom evans's Discussions (10)

Discussions Replied To (8) Replies Latest Activity

"We have travelled alot with Benjamin and have learned just how much easier a roll in…"

tom evans replied Apr 4, 2013 to Bathroom Modifications - Do I really want/need a roll-in shower?

11 Jun 24, 2013
Reply by Matt Wallace

"Maggie, I am very hesitant to respond to this because our experience with this was s…"

tom evans replied Aug 16, 2012 to Spinal Fusion

3 Aug 21, 2012
Reply by Stephanie Matthes

"Ben was in the trial at Philly, I hope we hear something soon because he is getting…"

tom evans replied Jul 21, 2010 to ataluren what are they doing?

11 Aug 10, 2010
Reply by ferre

"Are they planning on any non-ambulatory studies,if so,how can we get on their list?"

tom evans replied Jul 10, 2010 to ACE-031 and UTROPHIN Levels

10 Jul 10, 2010
Reply by Joshua's mom

"Thank You Veronica,I hope that no one here has to experience their own family reject…"

tom evans replied Jun 25, 2010 to It's not their problem

7 Nov 12, 2010
Reply by becca r

"I'm so sorry for your loss,our Benjamin always talks about when he walks again,so ma…"

tom evans replied Apr 27, 2010 to Son lost fight With DMD after 26 years

27 Jun 10, 2010
Reply by Denise Horgan

"This looks encouraging, Ben's mutation is on exon 59, will they be able to alter the…"

tom evans replied Apr 6, 2010 to PMO produces dystrophin through out the body

8 Apr 7, 2010
Reply by Ofelia Marin

"Ben was in the original trial in Philly,he goes for his biopsy Jan.7th and will begi…"

tom evans replied Nov 24, 2008 to PTC124 Phase 2A Extension Study

47 Jan 19, 2009
Reply by sara powell


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