PPMD Community

Technology (34)

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Has anyone tried a Segway (scooter) for the late ambulation period?

I had a thought this morning that a Segway might be better than a wheel chair as the standing would help to prevent contractures. The Segwa…

Started by Bruce Ward

0 Oct 3

Building a Calf / Ankle Stretch Ramp for use while brushing teeth for $15

My cost was actually $0. I saw lots of expensive options online then decided to build one from scrap laying around.  It is not pretty but i…

Started by Bruce Ward

0 Sep 28

Google Glass Blog from someone with DMD

Hi my name is Tayjus Surampudi and I am 18 year old senior in high school with DMD. Recently I was given the opportunity to get the Google…

Started by Tayjus Surampudi

3 Sep 22
Reply by David

Is anyone using a Fitbit or other activity tracker to track movement and progression?

First let me start by thanking everyone for their contribution to this forum.  The historical data is immensely valuable to those of us new…

Started by Bruce Ward

0 Sep 22

Driving Modifications for Handicapped Accessible

If your van has been modified for driving for our son, I would be interested in speaking with you to identify the agency or company or cert…

Started by Michael Piacentino

0 Sep 4

Driving Modifications for Handicapped Accessible

If your van has been modified for driving for our son, I would be interested in speaking with you to identify the agency or company or cert…

Started by Michael Piacentino

0 Sep 4

Dorsi-Lite

  Has anyone used this or know if it may be useful instead of the night splits? The one we use keeps coming off partially (the velcro stra…

Started by amit gupta

3 Nov 27, 2011
Reply by Bryan & Cari Sweet

Ways to setup a NIV system

There have been some questions on my sons NIV setup, We thought the answers should go in a more public area of the PPMD Community, so here…

Started by Ann Avery

7 Oct 22, 2011
Reply by Deb Robins

Anyone see or used Neater Arm Support by http://www.neater.co.uk

Found this on line. It is motorized so it does not depend on rubber bands...   Anyone seen it or heard of it or used it?   Thanks, Ginny

Started by Ginny Ward

0 Dec 19, 2010

What vents are your boys using?

Howdy all. My son Kaleb (16) started using a Palmonetic LTV950 at night a little over a month ago but we seem to be having difficulties get…

Started by Mark Whiteley

4 Dec 10, 2010
Reply by Jason Hubal

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