Steroids (140)

Discussions Replies Latest Activity

Wait four months to join clinic trial or start with prednisone now

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatm…

Started by Tao Wang

3 Jun 27, 2019
Reply by Shawn

Emplaza in US

The cost of the medication is more than $10,000 for a 30 day supply. Insurance has also rejected it. So, wanted to check if there is a bett…

Started by Ankur Handa

2 Oct 6, 2018
Reply by Ankur Handa

What was your son's experience switching from prednisone to deflazacort (Emflaza)?

I know that obtaining deflazacort in the US is quite difficult now.  We are waiting for genetic test results for our ambulant (417 meter 6M…

Started by Bruce Ward

0 Sep 25, 2017

Corticosteroids may be linked to heart disease

Anyone have an idea of this article? It seems that to start using corticosteroid at the age of 5 may be linked to heart diseases. My son be…

Started by dietf

0 Jul 6, 2017

Deflazacort dosing schedule

We are planning to start Deflazacort in a few weeks. Our son is on the small side and so the limited growth associated with deflazacort is…

Started by Lisa Tepper

7 Nov 6, 2016
Reply by Peter

Deflazacort no longer available in the US?

We ordered Deflazacort for our son nearly a month ago from Masters in the UK and hadn't received it. Got a letter today from the US FDA at…

Started by Shawn

7 Sep 27, 2016
Reply by Shawn

deflazacort instead of corticosteriods

hi all can anybody help me to get deflazacort for my 10 years old son instead of corticosteriods. knowing that i live iin Egypt. thanks ver…

Started by ahmed Sayed Abdel Gawad

0 Sep 27, 2016

Prednisone and weight gain

Hi all, My 5-year-old has recently started on Prednisone. So far the side-effects have been ok - he is a little bit more emotional and his…

Started by Nita McGauran

3 Aug 27, 2016
Reply by Jay Griffin

Why is Deflazacort best choice?

Hello everyone,I am a new mom with a boy of 7 years with Duchenne muscular dystrophy. We are from the Croatian small countries in Europe.Ap…

Started by Andrea Ruzic

18 Jan 6, 2016

Steroids - what to expect? what dosage? which one?

Hi guys,  I have a lot of questions about steroids, regimes and brands. My son is 4 in April and has to start steroids around November. …

Started by omaira

3 Jun 24, 2015
Reply by Galia Ben Ishay


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