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Wait four months to join clinic trial or start with prednisone nowMy son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatm… Started by Tao Wang |
3 |
Jun 27, 2019 Reply by Shawn |
Emplaza in USThe cost of the medication is more than $10,000 for a 30 day supply. Insurance has also rejected it. So, wanted to check if there is a bett… Started by Ankur Handa |
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Oct 6, 2018 Reply by Ankur Handa |
What was your son's experience switching from prednisone to deflazacort (Emflaza)?I know that obtaining deflazacort in the US is quite difficult now. We are waiting for genetic test results for our ambulant (417 meter 6M… Started by Bruce Ward |
0 | Sep 25, 2017 |
Corticosteroids may be linked to heart diseaseAnyone have an idea of this article? It seems that to start using corticosteroid at the age of 5 may be linked to heart diseases. My son be… Started by dietf |
0 | Jul 6, 2017 |
Deflazacort dosing scheduleWe are planning to start Deflazacort in a few weeks. Our son is on the small side and so the limited growth associated with deflazacort is… Started by Lisa Tepper |
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Nov 6, 2016 Reply by Peter |
Deflazacort no longer available in the US?We ordered Deflazacort for our son nearly a month ago from Masters in the UK and hadn't received it. Got a letter today from the US FDA at… Started by Shawn |
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Sep 27, 2016 Reply by Shawn |
deflazacort instead of corticosteriodshi all can anybody help me to get deflazacort for my 10 years old son instead of corticosteriods. knowing that i live iin Egypt. thanks ver… Started by ahmed Sayed Abdel Gawad |
0 | Sep 27, 2016 |
Prednisone and weight gainHi all, My 5-year-old has recently started on Prednisone. So far the side-effects have been ok - he is a little bit more emotional and his… Started by Nita McGauran |
3 |
Aug 27, 2016 Reply by Jay Griffin |
Why is Deflazacort best choice?Hello everyone,I am a new mom with a boy of 7 years with Duchenne muscular dystrophy. We are from the Croatian small countries in Europe.Ap… Started by Andrea Ruzic |
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Jan 6, 2016 Reply by EMIR SULEJMANOVIC |
Steroids - what to expect? what dosage? which one?Hi guys, I have a lot of questions about steroids, regimes and brands. My son is 4 in April and has to start steroids around November. … Started by omaira |
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Jun 24, 2015 Reply by Galia Ben Ishay |
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