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finding the appropriate hospital beds

Can anyone out there tell be what brand of hospital bed out there is the best or best ones ?  My son will be 19 soon.

Started by Suzanne Desmond

1 Aug 8
Reply by Darren Mulligan

Gene transfer corrects severe muscle defects in mice with Duchenne muscular dystrophy

Gene transfer corrects severe muscle defects in mice with Duchenne muscular dystrophy Duchenne muscular dystrophy is a rapidly progressive…

Started by Jason Darienzo

0 Jul 27

Duplication of Exon 53 to 57 out of frame

Hello everybody, anyone has a patient son with duplication of Exon 53 to 57 ,also I would like to know would some out of frame mutations le…

Started by Shady

1 Jul 16
Reply by Sanja Kogelnik

Key to muscle regeneration discovered

https://www.sciencedaily.com/releases/2017/06/170614160527.htm

Started by Jason Darienzo

2 Jun 15
Reply by Jason Darienzo

Tamoxifen for children with duchenne

Dear parents my 7 year old son was recently diagnosed with dmd and we are waiting a genetic test ,he can walk till now and he started tamox…

Started by Shady

0 May 30

WHAT WILL HAPPEND IF DUCHENN BOYS GENDER CHANGE

Dear All if we change  sex of   duchenne boys into a girl . Does girl will have same disease or she will died at 20-30 age what will happen…

Started by vijender bajaj

1 May 25
Reply by Bernardo A. Iriberri

vitamin k2

Does anyone supplement with vitamin k2?at what doses?What are The results on bone density?

Started by Michele Di Iorio

1 May 2
Reply by JoonGoo Lee

Translarna otherwise know as Ataluren

Hi, i'm curoius to know if anyone outside of US and Canada has had their child on the Drug Translarna or Ataluren?  My son has been diagnos…

Started by Nadia Alaimo

0 Apr 18

frequent falls

Anyone experience many falls?even a few every day?

Started by Michele Di Iorio

1 Apr 6
Reply by Brian Denger

Chicago DMD Families

Hi ! This is Rupjani, my son Anuran was diagnosed with DMD in 2010 when we are in Wisconsin . We were there from 2010 to 2013 , after tha…

Started by Rupjani B

0 Apr 6

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