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BATHROOM ACCESSIBILITY

Hi all,  we are in the process of renovating our bathroom to make it more accessible for my son.  We have limited space so we cannot make i…

Started by MaryEllen Sicoli

2 Dec 23, 2016
Reply by Gretchen McPherson

Extra Large Bowel Movements, but not exactly Constipation

I have a question:  As long as we can remember, our son has had LARGE BMs - large enough to clog the loo on occasion. We have never used Mi…

Started by irishgirl

0 Nov 24, 2016

homecare beds/mattress

Hi, does anyone have a lateral rotation mattress to recommend, such as MA95Z or other mattress? How about a bed then? We are familiar with…

Started by Sharon Wood

1 Nov 23, 2016
Reply by Michelle Scaglione

Use of creatinine for DMD

Good night I have a child with DMD, consult any of you take creatinine, and if it worked for you.

Started by Eddy Rivera

0 Nov 8, 2016

Any new drugs expected next 3-5 years?

I read a lot about various drugs and methods developed and tested. Anyone know if any new drug will hit the market in the next 5 years? I m…

Started by Chris

7 Nov 2, 2016
Reply by Steven

Any treatment for Exon 46

Any treatment for Exon 46

Started by srinivas

0 Nov 1, 2016

Statins and muscels

What do you think about? http://www.musculardystrophyuk.org/app/uploads/2015/02/Statins-and-muscles-2016.pdf

Started by Sanja Kogelnik

1 Oct 17, 2016
Reply by Jason Darienzo

Stem cells not a sollution?

What do you think about this research? http://musculardystrophynews.com/2016/10/05/duchenne-tongue-on-chip-model-showss-hortcomings-of-musc

Started by Michael Bazant

4 Oct 12, 2016
Reply by Michael Bazant

Pfizer Extends Age Eligibility for Myostatin Inhibitor Trial

I haven't seen this on PPMD yet so I thought I'd share. Pfizer has extended the age range for their Myostatin Inhibitor trial.  Originally…

Started by Andrew Kerr

0 Oct 9, 2016

Sarepta and Summit license partnership

http://www.fiercebiotech.com/biotech/summit-sarepta-584m-plus-dmd-pipeline-licence-pact-europe Excellent news for the community. 

Started by Steven

0 Oct 4, 2016

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