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Hi all,  we are in the process of renovating our bathroom to make it more accessible for my son.  We have limited space so we cannot make i…

Started by MaryEllen Sicoli

2 Dec 23, 2016
Reply by Gretchen McPherson

Extra Large Bowel Movements, but not exactly Constipation

I have a question:  As long as we can remember, our son has had LARGE BMs - large enough to clog the loo on occasion. We have never used Mi…

Started by irishgirl

0 Nov 24, 2016

homecare beds/mattress

Hi, does anyone have a lateral rotation mattress to recommend, such as MA95Z or other mattress? How about a bed then? We are familiar with…

Started by Sharon Wood

1 Nov 23, 2016
Reply by Michelle Scaglione

Use of creatinine for DMD

Good night I have a child with DMD, consult any of you take creatinine, and if it worked for you.

Started by Eddy Rivera

0 Nov 8, 2016

Any new drugs expected next 3-5 years?

I read a lot about various drugs and methods developed and tested. Anyone know if any new drug will hit the market in the next 5 years? I m…

Started by Chris

7 Nov 2, 2016
Reply by Steven

Any treatment for Exon 46

Any treatment for Exon 46

Started by srinivas

0 Nov 1, 2016

Statins and muscels

What do you think about? http://www.musculardystrophyuk.org/app/uploads/2015/02/Statins-and-muscles-2016.pdf

Started by Sanja Kogelnik

1 Oct 17, 2016
Reply by Jason Darienzo

Stem cells not a sollution?

What do you think about this research? http://musculardystrophynews.com/2016/10/05/duchenne-tongue-on-chip-model-showss-hortcomings-of-musc

Started by Michael Bazant

4 Oct 12, 2016
Reply by Michael Bazant

Pfizer Extends Age Eligibility for Myostatin Inhibitor Trial

I haven't seen this on PPMD yet so I thought I'd share. Pfizer has extended the age range for their Myostatin Inhibitor trial.  Originally…

Started by Andrew Kerr

0 Oct 9, 2016

Sarepta and Summit license partnership

http://www.fiercebiotech.com/biotech/summit-sarepta-584m-plus-dmd-pipeline-licence-pact-europe Excellent news for the community. 

Started by Steven

0 Oct 4, 2016


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