PPMD Community

Research (1,236)

Sort by:

Discussions	Replies	Latest Activity
‘muscle memory’ exists at a DNA level https://www.sciencedaily.com/releases/2018/01/180130091144.htm Are there any implications on periodic dosing of steroid for DMD? Started by Jason Darienzo	0	Jan 30
IDEBENONE Anyone giving Idebenone to your kids?If so, what dose and is it having anche impact? Started by Michele Di Iorio	0	Jan 26
Facebook DMD Groups Five months ago I found this forum and hoped that it would be a source of information about Duchenne. Unfortunately I found that participa… Started by Bruce Ward	0	Jan 21
Tamoxifen clinical trials Good day, Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,an… Started by Shady	11	Jan 21 Reply by Sandro
Tamoxifen Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru… Started by Galia Ben Ishay	47	Jan 21 Reply by Sandro
Spearville's Byrum Bittel prepares for stem cell transplant SPEARVILLE — Over the past year, Byrum Bittel has dropped 50 to 75 pounds. He’s lost strength in his arms, and routine tasks have become mo… Started by bob koch	18	Jan 17 Reply by jiasusa5
DMD carrier - PGD - carrier embryos Hi, My husband and I, have embarked upon PGD as I am a carrier of Duchenne Muscular Dystrophy (DMD). My brother passed away from dmd aged… Started by Suki	0	Jan 3
Drug discovery could accelerate hugely with machine learning https://www.sciencedaily.com/releases/2017/12/171214144442.htm Started by Jason Darienzo	0	Dec 14, 2017
Rapamycin prevents age-related loss of stem cells https://www.sciencedaily.com/releases/2017/12/171207141721.htm Adult stem cells replenish dying cells and regenerate damaged tissues throug… Started by Jason Darienzo	0	Dec 8, 2017
Letter of Medical Necessity I am trying to get home health care( nursing and aide ) for my 18 year old son who can not do ANYTHING for himself Does anyone have a good… Started by Najat Azar	0	Nov 8, 2017