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Exon 44 Deletion I have just received the genetic results for Preston. They have found that he is missing Exon 44. I have been doing some research regarding… Started by Geraldine Coolidge	23	Feb 13 Reply by Sai Chand. Gurujala
Nicotinamide riboside I read a lot lately about vitamin Nicotinamide riboside and I was wondering if anyone ever tried this on child , and in what doses? Here… Started by Sanja Kogelnik	18	Feb 10 Reply by Sanja Kogelnik
Exon Duplications of 2 to 4 I request you to please help us. My nephew is diagnosed with DMD in 2016.His age is 7.5 years. Hemizygous Duplication of Exons 2 - 4. MLPA… Started by Sai Chand. Gurujala	0	Feb 10
Fibrogen Does anybody have experiences in Fibrogen FG-3019 study? If has, please share!!!! Started by Rados Ágnes	0	Jan 23
Lisinopril heart medication Just wanted some advice on lisinopril Started by anna ndiaye	1	Jan 23 Reply by Rahul Deshpande
Relocating to Nashville Hello, We will be relocating to Nashville. We have a 16 year old with DMD and would like to connect with other DMD families in the area. W… Started by ana das	2	Jan 12 Reply by ana das
BATHROOM ACCESSIBILITY Hi all, we are in the process of renovating our bathroom to make it more accessible for my son. We have limited space so we cannot make i… Started by MaryEllen Sicoli	2	Dec 23, 2016 Reply by Gretchen McPherson
Extra Large Bowel Movements, but not exactly Constipation I have a question: As long as we can remember, our son has had LARGE BMs - large enough to clog the loo on occasion. We have never used Mi… Started by irishgirl	0	Nov 24, 2016
homecare beds/mattress Hi, does anyone have a lateral rotation mattress to recommend, such as MA95Z or other mattress? How about a bed then? We are familiar with… Started by Sharon Wood	1	Nov 23, 2016 Reply by Michelle Scaglione
Use of creatinine for DMD Good night I have a child with DMD, consult any of you take creatinine, and if it worked for you. Started by Eddy Rivera	0	Nov 8, 2016