Research (1,236)

Discussions Replies Latest Activity

Stretching video

There was a great video on this site that I watched about a week ago, but can no longer find it. It showed a PT stretching a DMD boy along…

Started by Wendy St.Geme

1 Aug 9, 2008
Reply by Lee Ann Faeth

Night AFO'S

When Justin finishes his serial casting he will be getting new afo's. He had previously gotten hinged ones but then Cincy recommended anoth…

Started by Kristi Koop

8 Aug 5, 2008
Reply by Kristi Koop

Are you Connected?

Parent Project MD has developed a patient/family registry for Duchenne and Becker MD with the name DuchenneConnect. Are you connected? The…

Started by Brian Denger

5 Aug 5, 2008
Reply by Brian Denger

Serial Casting

Just awhile back there was discussion on serial casting. We are in the process of finding someone to do the serial casting on Justin. Mom…

Started by Kristi Koop

0 Jul 25, 2008

health ins...

my grandson was diagonsed with ducheens..can anyone help me with health ins. avaiable to assist the parents or social security benefits bot…

Started by joann

7 Jul 25, 2008
Reply by joann

Need information on scoliosis surgery with some cardio

My son is 14 yo and we are planning on scoliosis surgery. He has a 30 degree curve. He does have mimimal pulmonary deficits and early heart…

Started by yolanda powers

0 Jul 23, 2008

DMD cure and wait

how and when these two words would sum up the anxiety of parents of DMD children. wait is ok but how long

Started by B.P Ravi

14 Jul 16, 2008
Reply by Terry Porcaro

Million Dollar CHallenge 2009 - Australia

This post is for any Australians or Singaporeans, or anyone interested in helping to raise money for research to find a cure for DMD. I am…

Started by Sharyn Thompson

1 Jul 16, 2008
Reply by Paul Cliff

Losartan Trial

My son Francis has DMD and will be 10 next month and is still walking. He has been on a waiting list for a Losartan Trial. Read somewhere t…

Started by Suzanne Desmond

10 Jul 14, 2008
Reply by Bains

Older boys with deletions 48 to 50

I would like to start this discussion because it is so amazing to see the similarities in boys with similar deletions. A few of us moms hav…

Started by maxine Strydom

5 Jul 11, 2008
Reply by maxine Strydom


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