Research (1,230)

Discussions Replies Latest Activity

No deletion detected??

What does this mean, are they any trials for this mutation??

Started by Celeste Dudley

4 Oct 5, 2008
Reply by Celeste Dudley

PPMD versus MDA donations...

Hi everyone, My husband Steve and I have donated to The MDA Telethon every year for the past few years since our son's DMD diagnosis. I wa…

Started by Suzanne Desmond

16 Oct 2, 2008
Reply by Paul Cliff

Everyone should try making the caringbridge site

Hi everyone, I sucessfully made the caringbridge site today for my son and it was not hard to do so but what a great way to keep friends an…

Started by neeraj

4 Sep 21, 2008
Reply by Jessica Rownd

Anyone care to comment or do a little free interpretation?

Is this a BIG advancement, or just some reiteration of old material? It sounds delightfully hopeful, but I'm also very willing to grasp at…

Started by Melanie

2 Sep 18, 2008
Reply by Jacobs Mommom

BMD and exercise

http://www.ncbi.nlm.nih.gov/pubmed/18776212?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPan

Started by Tina

2 Sep 15, 2008
Reply by Roxanne

Busy Dr. Wong

Does anyone notice how busy Dr. Wong is getting? We have seen her for three years now and man...it is getting tough to get appts. At first…

Started by Jeanette Vaughan

8 Sep 11, 2008
Reply by Jeanette Vaughan

AVI presentation about Exon Skipping -- quite informative!

Please listen/read AVI's presentation. There are lots of answers to our questions. Transitioning an Antisense Pioneer into a Leading RNA–b…

Started by Ofelia Marin

0 Sep 11, 2008

Trying to understand all this medical stuff...

My son, Aaron, was diagnosed with DMD a little more than two years ago now and of course I've spent a lot of time scouring the internet sin…

Started by Melanie

4 Sep 10, 2008
Reply by Melanie

Deletion

Unsure if anyone can help with my query, but my nephew was diagnosed with Duchenne 2 years ago and he has a deletion of 8-21. His biopsy sh…

Started by Eliane Khoury

20 Sep 3, 2008
Reply by Jeff Sobel

When or how do you apply for Medicare?

Does Medicare help with the care for Duchenne MD? We do have insurance, but with braces, MRI's and other tests we still have high medical b…

Started by Karen Jones

4 Sep 2, 2008
Reply by George Lossmann

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