Research (1,240)

Discussions Replies Latest Activity

PTC 124 Clinical Trial in Sacramento, California

All, I just want to get the word out the PTC 124 clinical trial in Sacramento is looking for qualified patients to start the trail. The cu…

Started by Julie Garcia

0 Nov 22, 2008


Where do you buy Juven from? directly from the website? Appreciate your feedback. Thanks! Ms.Bain

Started by Bains

21 Nov 18, 2008
Reply by Kelvinsmom - Michelle

Vibration Therapy

My son Alex is 8 and has DMD. He has reduced bone density so his doctor has recommended he receive bisphosphenates by IV this fall. I've he…

Started by Debra Chiabai

10 Nov 17, 2008
Reply by Debra Chiabai

Sarcospan, a little protein for a big problem

Hi all, Does this mean anything to anyone - just received notification of this but no-one I know has heard of it! regards Mark London, UK…

Started by Marks33

7 Nov 12, 2008
Reply by Paul Cliff

Michigan stem cell research ballot proposal

FYI, Michigan has an proposal on the ballot next month to overturn the state's current total ban on embryonic stem cell research. Michigan…

Started by Keith Van Houten

2 Nov 11, 2008
Reply by Keith Van Houten

more advances for PPMO technology

though not related to DMD it shows that PPMO is safe. I am hoping DMD PPMO is on the way.

Started by Tulika

0 Nov 10, 2008

Combating Muscle Fatigue

Researchers have identified a potential cause of fatigue in patients with neuromuscular diseases such as Duchenne muscular dystrophy. The f…

Started by Bains

1 Oct 30, 2008
Reply by Kari


Is there anyone who has gone through the trial screening or even potentially getting the drug in the 2b trial,if so how long have you been…

Started by neeraj

16 Oct 29, 2008
Reply by Melissa Yurik


Study by CHOP on Clinical Trials - We need YOU to participate

Hi Everyone! In keeping with our goal to inform families about current research endeavors, we would like to share information with you abo…

Started by Ryan Fischer

3 Oct 26, 2008
Reply by Colin McKenzie


Santhera announced the approval of CATENA in CANADA for friedreich's Ataxia. It is available now in CANADA with prescription. I contacted t…

Started by Bains

11 Oct 21, 2008
Reply by Ofelia Marin


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