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Research (1,215)

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Propose research that is important to you

Adding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com…

Started by Holly PeayLatest Reply


Staff

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi KinnettLatest Reply

Heart Transplant update

We wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar…

Started by TammyLatest Reply

Discussions Replies Latest Activity

idebenone

Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?

Started by Michele Di Iorio

1 7 hours ago
Reply by Bruce Ward

Exon 45 skipping/ exon 51 skipping, Help to make a hard decision !!.PLEASE HELP.

Hi We are planning to participate in exon 45 skipping trail, for our 12 year old son. Is any one already enrolled in the exon skipping  tr…

Started by sulthana shaik

2 7 hours ago
Reply by Bruce Ward

Tamoxifen clinical trials

Good day, Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,an…

Started by Shady

3 8 hours ago
Reply by Bruce Ward

Exon 17 Duplication

Hi my son has duplication (Exon 17) anybody with that specific Exon 17 duplication?

Started by ruben lengler

1 on Friday
Reply by David

Ataluren

Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he…

Started by Azucena Lopez de Nava

3 Sep 18
Reply by Antonio Castro

Exon Duplications

Hi All, Clinical research is going on Deletions. Anybody has any idea on Duplication's research. Serepta Pharma working on 40-53 Deletions.…

Started by Sai Chand. Gurujala

0 Sep 11

Shortened telomeres linked to dysfunction in Duchenne muscular dystrophy, researchers find

Shortened telomeres linked to dysfunction in Duchenne muscular dystrophy, researchers find New method reveals abnormally shortened telomere…

Started by Jason Darienzo

0 Sep 7

Tamoxifen

Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

40 Aug 29
Reply by JUAN PEDRO ARBULU

The Logan Letters

Check out the book that I just wrote about my life and my coping process with DMD. It details my faith in Christ and the unique community o…

Started by Logan Shannon

0 Aug 15

Deletion exons 5-16

Hello, My son is recently diagnosed as Duchenne. He is 6 years old. I checked previous discussios. So ı want to talk with parents their so…

Started by Can Hope

4 Aug 9
Reply by Shady

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