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Research (1,206)

Featured Discussions

Propose research that is important to you

Adding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com…

Started by Holly PeayLatest Reply


If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi KinnettLatest Reply

Heart Transplant update

We wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar…

Started by TammyLatest Reply

Discussions Replies Latest Activity


Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

38 on Sunday
Reply by Galia Ben Ishay

finding the appropriate hospital beds

Can anyone out there tell be what brand of hospital bed out there is the best or best ones ?  My son will be 19 soon.

Started by Suzanne Desmond

0 Jul 18

Duplication of Exon 53 to 57 out of frame

Hello everybody, anyone has a patient son with duplication of Exon 53 to 57 ,also I would like to know would some out of frame mutations le…

Started by Shady

1 Jul 16
Reply by Sanja Kogelnik

Key to muscle regeneration discovered


Started by Jason Darienzo

2 Jun 15
Reply by Jason Darienzo

Tamoxifen for children with duchenne

Dear parents my 7 year old son was recently diagnosed with dmd and we are waiting a genetic test ,he can walk till now and he started tamox…

Started by Shady

0 May 30


Dear All if we change  sex of   duchenne boys into a girl . Does girl will have same disease or she will died at 20-30 age what will happen…

Started by vijender bajaj

1 May 25
Reply by Bernardo A. Iriberri

vitamin k2

Does anyone supplement with vitamin k2?at what doses?What are The results on bone density?

Started by Michele Di Iorio

1 May 2
Reply by JoonGoo Lee

Translarna otherwise know as Ataluren

Hi, i'm curoius to know if anyone outside of US and Canada has had their child on the Drug Translarna or Ataluren?  My son has been diagnos…

Started by Nadia Alaimo

0 Apr 18

frequent falls

Anyone experience many falls?even a few every day?

Started by Michele Di Iorio

1 Apr 6
Reply by Brian Denger

Chicago DMD Families

Hi ! This is Rupjani, my son Anuran was diagnosed with DMD in 2010 when we are in Wisconsin . We were there from 2010 to 2013 , after tha…

Started by Rupjani B

0 Apr 6


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