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Research (1,197)

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Propose research that is important to you

Adding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com…

Started by Holly PeayLatest Reply


If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi KinnettLatest Reply

Heart Transplant update

We wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar…

Started by TammyLatest Reply

Discussions Replies Latest Activity


Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

18 on Friday

Ataluren and Prednisone

My son is 13 years old now Ataluren and drink with him prednisone 20 mg. Should you continue to drink prednisone. How long?

Started by Mariana Mitreva

0 on Wednesday

Peptide reverses cardiac fibrosis in a preclinical model of congestive heart failure


Started by Jason Darienzo

0 Feb 25

Astrology and MD

Started by shashi champaneria

59 Feb 16
Reply by Sai Chand. Gurujala

Exon 44 Deletion

I have just received the genetic results for Preston. They have found that he is missing Exon 44. I have been doing some research regarding…

Started by Geraldine Coolidge

23 Feb 13
Reply by Sai Chand. Gurujala

Nicotinamide riboside

I read a lot lately about vitamin Nicotinamide riboside and I was wondering if anyone ever tried this on  child , and in what doses? Here…

Started by Sanja Kogelnik

18 Feb 10
Reply by Sanja Kogelnik

Exon Duplications of 2 to 4

I request you to please help us. My nephew is diagnosed with DMD in 2016.His age is 7.5 years. Hemizygous Duplication of Exons 2 - 4. MLPA…

Started by Sai Chand. Gurujala

0 Feb 10


Does anybody have experiences in Fibrogen FG-3019 study? If has, please share!!!!

Started by Rados Ágnes

0 Jan 23

Lisinopril heart medication

Just wanted some advice on lisinopril

Started by anna ndiaye

1 Jan 23
Reply by Rahul Deshpande

Relocating to Nashville

Hello, We will be relocating to Nashville. We have a 16 year old with DMD and would like to connect with other DMD families in the area. W…

Started by ana das

2 Jan 12
Reply by ana das


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