Research (729)
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 Staff If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co… Started by Kathi KinnettLatest Reply |
Learning helpHi All, Andrew is 6 1/2 years old and is in the first grade. We are concerened, we have been for awhile, that he is so far behind in everyt… Started by AlissaLatest Reply |
 Heart Transplant updateWe wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar… Started by TammyLatest Reply |
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 Halohttp://www.fiercebiotech.com/story/halo-takes-virtual-approach-developing-dmd-treatment/2012-04-12 Started by Amrit |
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4 hours ago Reply by Ofelia Marin |
 weight controlHello everyone, My son has DMD and is now wheelchair bound for about two years. We are struggling with his weight. He eats small servings,… Started by Tang Thao |
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13 hours ago Reply by Christine P. |
 School Years????Hello again everyone! it's been awhile since I wrote and happy to say my son has been doing well with his transtion to the Middle school. H… Started by Pamela Myers |
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yesterday Reply by Brian Denger |
 Pharmacy On-lineWe ordered Deflazacort from Canadian Pharmacy but the medicine's origin is India. Anybody know On-line pharmacy who can supply Canadian ori… Started by Trinh Nguyen |
0 | on Monday |
 Scooting To The Next StepMichael is 7 years old and is struggling with some distance walking and weary legs. We are thinking a scooter is the next step. We want to… Started by Cathie Bullis |
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on Sunday Reply by Angela Bourgeois |
Family mattersOk, so why is it that everyone in my family thinks im in denial about Jacob. Its like they expect me to be miserable. II refuse tto spend… Started by christopher lundy |
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on Sunday Reply by Anna Mossiat |
 DeflazacortMy son's physician wrote us a prescription for deflazacort and I am looking to touch base with other families that have started their child… Started by Darren L Wilson |
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on Sunday Reply by djamel fathi |
 Heart scar tissue into healthy muscleStarted by Anna Mossiat |
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on Saturday Reply by Anna Mossiat |
ProteinsMy son's doctor suggested we have less proteins in his diet,pointing out that a lot of proteins may be affect his muscles adversely.He at t… Started by wainaina muiruri |
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May 19 Reply by Anna Mossiat |
 Worlds first approved stem cell treatmentThough it's not for DMD the key point to note is that approval is given for kids who are not responding to steroids. The company is obligat… Started by Tulika |
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May 18 Reply by David |
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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