Grief and Loss (35)

Discussions Replies Latest Activity

Please Help - 5 yo Son Diagnosed - We are just overwhelped and broken hearted

Is there any support phone number?  Or are there any parents who could have a conference call with us to just help us emotionally and talk…

Started by Chris

4 Jul 28, 2016
Reply by Ryan Fischer

All Alone

My only remaining friend who had DMD like me died a few weeks ago but i still cannot move past it, im almost 22 now and i dont know why i r…

Started by Maria Isabelle Salamon

4 Jul 16, 2015
Reply by Moises J. Ramos

Jonah died today

              I have two sons with DMD , but my oldest passed away this morning about 8:00.  He was a fantastic kid. I loved him so much an…

Started by bob

25 Mar 23, 2015
Reply by danielle

Its can be an A-Ha moment

Its coming to a year since Timothy's passing. I know the grief will go on. When loosing a child, that grief, that loss never ends.  It hurt…

Started by Dee

0 Jan 8, 2015

Struggling to cope

Hi all, it's coming up to 2 years since we got our son's diagnosis. He is three, and we recently had another little boy who doesn't have DM…

Started by omaira

5 Jun 11, 2014
Reply by bob

Resources for the tough questions

Hello, my Son Brandon is 12 and starting to ask some questions about his disease, we have always believed that we answer his questions as h…

Started by Cinni

6 Mar 28, 2014
Reply by Kim S

Saying good bye to Brice Fite

Brice Fite went home to God on August 22, 2012 five days after his 23rd birthday. Brice touch so many lives during his time on earth. I wil…

Started by Tim Fite

6 Sep 14, 2012
Reply by Jennipher Poffenberger

Another heartbreak

After losing my sweet Max seven months ago, we recently found out my sister -- my best friend on earth -- has brain cancer. She has a littl…

Started by Veronica E.

6 Jul 25, 2012
Reply by Terry Porcaro



Started by Sherri Hadley

12 May 13, 2012
Reply by Gina Manning

Our Max

It is with incredible sadness that I tell you, my Duchenne community friends, that our precious Max, 3 1/2, died unexpectedly last week. We…

Started by Veronica E.

28 Apr 29, 2012
Reply by Thomas Hoel


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