General Discussion (319)

Discussions Replies Latest Activity

Adaptive Sports

Just wondering if any boys out there do any adaptive sports?   If so, which ones?    

Started by Karen Jones

0 Nov 1, 2010

FMLA question

I have intermittent FMLA ,and have used it for the first time today(in last 3 year).Do I have to have any thing as proof of my sons sicknes…

Started by Archana

2 Oct 27, 2010
Reply by Archana

Pain in testicles?

I have a 18yr. old son that has been in a wheelchair for about 4 1/2 yrs. Just in the last year, he has been complaining about his testicle…

Started by Susan Nantais

3 Oct 25, 2010
Reply by Jo-Anne

Growth Hormones - endocrinologist who prescribe to DMD boys who are NOT GH deficient

Hello families -   I just wanted to reach out to ask a very off the wall question.  I am trying to get my son on GH's and he is not GH defi…

Started by Kim Maddux

17 Oct 24, 2010
Reply by Alejandra Lagffer

DMD Clinics

We are trying to make a decision on switchng from LPCH to another MDA clinic or DMD clinic, we live in California...any suggestions, where…

Started by Leeandra Arhdeacon

5 Oct 23, 2010
Reply by Bill Cain

dmd and depression

My son Cody is 10 years old and has dmd. He seems depressed here lately especially since he came home from camp last week. In the car on th…

Started by Jennifer Chalfan

9 Oct 22, 2010
Reply by Michael Piacentino

Medical check up

My son is due a medical check up next week. I was just wondering if anyone could give me any advice as to what I should expect the doctors…

Started by lisa burke

3 Oct 4, 2010
Reply by Lori Ware

Accessible pants for using a urinal

I have 2 pairs of boys pants size 16 I had modified with zipper opening in crotch for easy urinal use but my son gained weight and never go…

Started by jessica and gary fluaitt

0 Oct 4, 2010

Kennedy Krieger

Does any one have any experience with the genetic muscle disorder institute at Kennedy Krieger, I think it opened fairly recently, Dr. Wagn…

Started by Theresa Hennigan

1 Sep 30, 2010
Reply by Brian Denger

Mineral Oil

Are any of you giving Mineral Oil to your boys for regular bowel movements. My son struggles with constipation and has been taking Miralax…

Started by Mandy

2 Sep 29, 2010
Reply by terry wilcox


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