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Advocacy (81)

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2010 Advocacy I just bought my tickets. With tax & everything, r/t from So Cal was only $240.00 http://www.parentprojectmd.org/site/PageServer?pagen… Started by Paul Cliff	8	Jan 31, 2010 Reply by Paul Cliff
Dr. Diana Escolar and Dr. Kathryn Wagner ~ looking for good quality care for your son? Here's a dynamic team! Dear Families, Friends and Colleagues, I've signed a contract with Kennedy Krieger Institute in Baltimore and will start seeing patients… Started by Tina	1	Jan 9, 2010 Reply by Linda
In New Way to Edit DNA called Zinc Fingers Found that very interesting has the potential to out perform current gene therapy techniques. I wood like to see MDA look into this to see… Started by Jason Darienzo	0	Dec 29, 2009
Mom, why? My son, Michael, is 4 years old with BMD. He was diagnosed a year ago. Since he was 3 we told him that God gave him "Special Muscles". He w… Started by Tamara "Michael's Mulisha"	10	Sep 22, 2009 Reply by Janine
Summer Advocacy Program - 2009 Anyone had success in getting an in-district meeting scheduled with their House member? I've heard nothing so far, after 3 emails and 2 ph… Started by Keith Van Houten	4	Aug 11, 2009 Reply by Jacobs Mommom
Achieving a Better Life Experience Act of 2009 (ABLE Act) First glance reading the synopsis of this Act - it seems like something that we as a community should consider advocating for (disclaimer -… Started by Paul Johnson	2	Jul 22, 2009 Reply by Brian Denger
Federal budget - FY2010 The President released his budget proposal for FY2010 to Congress this week, as you've no doubt heard in the news. Here's what I've been a… Started by Keith Van Houten	10	Jul 21, 2009 Reply by Keith Van Houten
"Gene Guru" named new head of NIH Dr. Francis Collins has been named the new head of the National Institutes of Health. He's quite well known in the field of genetics. He wa… Started by Keith Van Houten	2	Jul 9, 2009 Reply by Jacobs Mommom
Help!!!! Canine Assistants Denied My Son!!! Canine Assistants has denied my son Shane his service animal! We were awarded it in 2004 and sponsered by Purina and Randalls,So It has bee… Started by Danie	3	Jun 23, 2009 Reply by Janine
This Years House and Senate letter Hi all, Just a quick note to remind everyone to make contact with congress to get support for NIH and CDC funding. We have a letter circul… Started by Julie Garcia	11	May 8, 2009 Reply by Julie Garcia