Discussions
Categories
Research
Exchange information on the latest in Duchenne research View Discussions
Tamoxifen 38 Replies
Started by Galia Ben Ishay. Last reply by Galia Ben Ishay on Sunday.
finding the appropriate hospital beds
Started by Suzanne Desmond Jul 18.
Duplication of Exon 53 to 57 out of frame 1 Reply
Started by Shady. Last reply by Sanja Kogelnik Jul 16.
Key to muscle regeneration discovered 2 Replies
Started by Jason Darienzo. Last reply by Jason Darienzo Jun 15.
Tamoxifen for children with duchenne
Started by Shady May 30.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Access to Translarna - a lego movie 1 Reply
Started by Marks33. Last reply by Mike O Feb 11, 2015.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7, 2014.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11, 2014.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11, 2014.
Need a favor ....
Started by Samantha Altilio Jan 6, 2014.
Education
Share information on learning about Duchenne View Discussions
scoliosis 2 Replies
Started by Joy Narmore. Last reply by Brenda Sep 2, 2016.
Cognitive Delay
Started by Stephanie Wimbish Aug 29, 2016.
IEP in state of Maryland 2 Replies
Started by Debby Meyers McGee. Last reply by Elizabeth Carr Sep 25, 2015.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Need special needs stroller
Started by sulthana shaik Jul 16.
Electronic wheelchair
Started by Sampreet Feb 11.
Where do adult DMD guys live independently?????? 3 Replies
Started by Ann Dillon. Last reply by Angela Jan 9.
Now I understand why social isolation is so prominent 1 Reply
Started by Leresa. Last reply by Conrad Klahn Dec 29, 2016.
Bathroom help at school 3 Replies
Started by Kelly Jacoby. Last reply by Gretchen McPherson Dec 23, 2016.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
PPMD as Charity of Choice on Amazon Smile
Started by Jeffrey Kopp Sep 20, 2016.
Everest to End Duchenne 2 Replies
Started by Gregg Kaloust. Last reply by Gregg Kaloust Sep 30, 2015.
Three kids of same family with muscular dystrophy need help 2 Replies
Started by SAHHID ZUBAIR. Last reply by SAHHID ZUBAIR Aug 22, 2015.
All in for Duchenne 2015 1 Reply
Started by Tammy Henegar. Last reply by Tony and Jen Dumm Jan 16, 2015.
Ice bucket challenge 3 Replies
Started by Mike O. Last reply by Judy Lumbourne Nov 18, 2014.
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Events
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Friar Fight to End Duchenne Golf Tournament
July 29, 2017 all day – Thornapple Pointe Golf Club
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Mitchell's Run thru Rockford
August 19, 2017 all day – Rockford, MI
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RFOS 2017 In Memory of Joshua Arndt 5K
August 19, 2017 all day – Buffalo, NY
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2017 Disneyland Half Marathon, 10K & 5K
September 1, 2017 to September 3, 2017 – Disneyland
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