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Research
Exchange information on the latest in Duchenne research View Discussions
Idebenone 2 Replies
Started by Nadja. Last reply by Nadja 12 hours ago.
Tissue engineering: Scientists grow leg muscle from cells in a dish
Started by Jason Darienzo on Wednesday.
SUMMIT ANNOUNCES THE FIRST PATIENTS DOSED IN PHASE 1B MODIFIED DIET CLINICAL TRIAL OF SMT C1100 FOR TREATMENT OF DMD 1 Reply
Started by Steven. Last reply by Steven on Tuesday.
Eplerenone 6 Replies
Started by Chris Diemler. Last reply by Shelly Feb 22.
VBP15 - Phase 1 clinical trial started
Started by Prakash Feb 19.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Access to Translarna - a lego movie 1 Reply
Started by Marks33. Last reply by Mike O Feb 11.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7, 2014.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11, 2014.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11, 2014.
Need a favor ....
Started by Samantha Altilio Jan 6, 2014.
Education
Share information on learning about Duchenne View Discussions
International University student 1 Reply
Started by Peter Hendriks. Last reply by Janine Feb 17.
First IEP 2 Replies
Started by Jessica Tucker. Last reply by Cynthia Lynn Parker Feb 4.
Please help my son to help others 3 Replies
Started by Richard Sizemore. Last reply by Richard Sizemore Jan 26.
Basic Genetics for DMD 4 Replies
Started by Janine. Last reply by Mena Shaher Jan 23.
Test for evaluating learning disablity 9 Replies
Started by Amrit. Last reply by David Jul 23, 2014.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Best way to shop for Handicap Van 10 Replies
Started by Lisa Groeger. Last reply by Michael Carlson on Wednesday.
Dynamic arm support for DMD ? 9 Replies
Started by ameer h. anan. Last reply by Michael Carlson on Wednesday.
Adjustment Spoon
Started by ameer h. anan Jan 17.
Computer access by mouse (pointing , clicking ) gets hard 9 Replies
Started by ameer h. anan. Last reply by Jason Darienzo Jan 8.
hoyer lift , stander, and hospital bed advice 8 Replies
Started by jenn. Last reply by Judy Lumbourne Nov 21, 2014.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
All in for Duchenne 2015 1 Reply
Started by Tammy Henegar. Last reply by Tony and Jen Dumm Jan 16.
Ice bucket challenge 3 Replies
Started by Mike O. Last reply by Judy Lumbourne Nov 18, 2014.
Fundraiser help for Rivera family
Started by Lacey rivera Jul 16, 2014.
Fundraising thru amazon shopping
Started by Bobby Vandalore Jul 12, 2014.
Joining jack
Started by Steven Jun 11, 2014.
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Dystrophin 101: Everything You Always Wanted to Know About the Duchenne Protein (And Were Not Afraid to Ask)
March 3, 2015 from 1pm to 2pm – Online Webinar - Eastern Time Zone
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MDA/ANN Conference 2015
April 16, 2015 to April 18, 2015 – Auckland, New Zealand
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Omaha Beer Fest
June 5, 2015 to June 6, 2015 – Omaha, NE
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2015 Annual Connect Conference
June 18, 2015 to June 21, 2015 – Washington, DC
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