Discussions
Categories
Research
Exchange information on the latest in Duchenne research View Discussions
how get sarepeta Injection in india 1 Reply
Started by vijender bajaj. Last reply by PPMD on Tuesday.
Exon 44 Deletion 15 Replies
Started by Geraldine Coolidge. Last reply by Marisa Carvalho Reis Sep 23.
Etiplersen will cost $300,000 1 Reply
Started by Mike O. Last reply by Andrew Kerr Sep 23.
The agency approves a drug after an ugly bureaucratic brawl
Started by Jason Darienzo Sep 19.
Sarepta Therapeutics shares jump on news of critic’s departure from FDA 4 Replies
Started by Jason Darienzo. Last reply by David Sep 19.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Access to Translarna - a lego movie 1 Reply
Started by Marks33. Last reply by Mike O Feb 11, 2015.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7, 2014.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11, 2014.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11, 2014.
Need a favor ....
Started by Samantha Altilio Jan 6, 2014.
Education
Share information on learning about Duchenne View Discussions
scoliosis 2 Replies
Started by Joy Narmore. Last reply by Brenda Sep 2.
Cognitive Delay
Started by Stephanie Wimbish Aug 29.
IEP in state of Maryland 2 Replies
Started by Debby Meyers McGee. Last reply by Elizabeth Carr Sep 25, 2015.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Bathroom help at school 1 Reply
Started by Kelly Jacoby. Last reply by Brenda Sep 2.
anyone 20 years or older with DMD still walking? 13 Replies
Started by Dakota Ferrazzi. Last reply by Bernardo A. Iriberri Aug 4.
Permobil F3 vs AmySystems
Started by Tayjus Surampudi Jul 24.
Foldable Electric Wheelchair travel in Italy 1 Reply
Started by Art. Last reply by Archana Jul 4.
Suggestions for power wheelchair 2 Replies
Started by Andreea Vasiliu. Last reply by Luis Cordero Dec 10, 2015.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
PPMD as Charity of Choice on Amazon Smile
Started by JB Kopp Sep 20.
Everest to End Duchenne 2 Replies
Started by Gregg Kaloust. Last reply by Gregg Kaloust Sep 30, 2015.
Three kids of same family with muscular dystrophy need help 2 Replies
Started by SAHHID ZUBAIR. Last reply by SAHHID ZUBAIR Aug 22, 2015.
All in for Duchenne 2015 1 Reply
Started by Tammy Henegar. Last reply by Tony and Jen Dumm Jan 16, 2015.
Ice bucket challenge 3 Replies
Started by Mike O. Last reply by Judy Lumbourne Nov 18, 2014.
Need help using this community site? Visit Ning's Help Page.
 |
 |
 |
Events
-
[Upcoming Webinar] Navigating Access to Therapies Once Approved
September 29, 2016 from 1pm to 2pm – Online Webinar - Eastern Time Zone
0 Comments 1 Favorite -
Run For Our Sons Peace, Love, Run 5K
October 1, 2016 all day – Dupree Lake Park
0 Comments 0 Favorites -
Sam's Night Texas
October 6, 2016 from 6pm to 9pm – 7th Floor Sky Deck
0 Comments 0 Favorites -
Miles for Matthew 5K/10K
October 8, 2016 all day – Greensboro, NC
0 Comments 0 Favorites
© 2016 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
