Discussions
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Research
Exchange information on the latest in Duchenne research View Discussions
Rare Treatments, Cleared by F.D.A. but Not Subject to Scrutiny 4 Replies
Started by Jason Darienzo. Last reply by Andrea Cleary on Friday.
No Idebenone Online Anymore 42 Replies
Started by Moein. Last reply by Tanja Petrovic on Thursday.
Gaming system for our boys 1 Reply
Started by Jessica Rownd. Last reply by Chris Diemler on Thursday.
Petition FDA on Eteplirsen
Started by Jason Darienzo on Tuesday.
Developing a better treatment for Duchenne muscular dystrophy
Started by liu on Tuesday.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Mother and son who fought the FDA are now fighting the state 6 Replies
Started by arnold. Last reply by wainaina muiruri Jul 13.
FDA Approval of Exon Skipping 86 Replies
Started by Paul Cliff. Last reply by Paul Cliff May 3.
Senator Collins Mourns the Passing of Matthew Denger
Started by PPMD Feb 27.
Pat Furlong featured in Belle of Steel interview for AgeView Press
Started by Jeanette Vaughan Aug 29, 2012.
Add your story to PPMDs 2012 Advocacy Effort with a flyer 3 Replies
Started by Gail D. McVicker. Last reply by Gerardo Javier reynoso Jul 1, 2012.
Education
Share information on learning about Duchenne View Discussions
College Transition 10 Replies
Started by Tayjus Surampudi. Last reply by Fred Luchetti Oct 28.
Technology for Writing 5 Replies
Started by Linda Currier. Last reply by Janine Oct 26.
Exon deletion of 47 and 48 3 Replies
Started by Parimal Khade. Last reply by mehrzad haidari Aug 29.
To Trach or not...Your thoughts? 18 Replies
Started by Mortman. Last reply by Adele Jun 19.
Heart Concerns 4 Replies
Started by Trisha Stringham. Last reply by Susana Arroyo Jun 19.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Mobility devices for races 7 Replies
Started by Sara Clime. Last reply by Leeandra Arhdeacon Nov 18.
how do you deal with everyday life moving your kid from a place to another ? 3 Replies
Started by Michele LAU. Last reply by Tamara Walters Nov 10.
driving 2 Replies
Started by Penny Cleland. Last reply by Brian Denger Oct 26.
Used McLaren Masters Special Needs Stroller 12 Replies
Started by MarcosDad. Last reply by Lynn Lenox Sep 9.
Wireless Monitor or Alert device 4 Replies
Started by Michael Piacentino. Last reply by Michael Piacentino Jul 10.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Virtual Run to Benefit Parent Project Muscular Dystrophy 6 Replies
Started by Laura Pita. Last reply by Andrew Kerr Nov 24.
Volley for a Cure MD - End Duchenne
Started by Donna Oct 21.
Raising money during tandem 5k/10k runs (Northern California) 5 Replies
Started by David. Last reply by David Feb 8.
Starting a Nonprofit Organization vs. Private Foundation for Fundraising 13 Replies
Started by Jeff Kopp. Last reply by bob Sep 17, 2012.
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