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Research
Exchange information on the latest in Duchenne research View Discussions
New CRISPR method efficiently corrects Duchenne muscular dystrophy defect in heart tissue 1 Reply
Started by Jason Darienzo. Last reply by Galia Ben Ishay Feb 7.
low back pain 1 Reply
Started by ahmed Sayed Abdel Gawad. Last reply by Kathi Kinnett Feb 5.
‘muscle memory’ exists at a DNA level
Started by Jason Darienzo Jan 30.
IDEBENONE
Started by Michele Di Iorio Jan 26.
Facebook DMD Groups
Started by Bruce Ward Jan 21.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Access to Translarna - a lego movie 1 Reply
Started by Marks33. Last reply by Mike O Feb 11, 2015.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7, 2014.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11, 2014.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11, 2014.
Need a favor ....
Started by Samantha Altilio Jan 6, 2014.
Education
Share information on learning about Duchenne View Discussions
scoliosis 2 Replies
Started by Joy Narmore. Last reply by Brenda Sep 2, 2016.
Cognitive Delay
Started by Stephanie Wimbish Aug 29, 2016.
IEP in state of Maryland 2 Replies
Started by Debby Meyers McGee. Last reply by Elizabeth Carr Sep 25, 2015.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Adaptive Fishing Gear? 2 Replies
Started by Michele. Last reply by David Mar 9.
When should we think about getting a chair lift 2 Replies
Started by marie noblett. Last reply by marie noblett Mar 8.
Driving Modifications for Handicapped Accessible
Started by Michael Piacentino Sep 4, 2017.
Need special needs stroller
Started by sulthana shaik Jul 16, 2017.
Electronic wheelchair
Started by Sampreet Feb 11, 2017.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
PPMD as Charity of Choice on Amazon Smile
Started by Jeffrey Kopp Sep 20, 2016.
Everest to End Duchenne 2 Replies
Started by Gregg Kaloust. Last reply by Gregg Kaloust Sep 30, 2015.
Three kids of same family with muscular dystrophy need help 2 Replies
Started by SAHHID ZUBAIR. Last reply by SAHHID ZUBAIR Aug 22, 2015.
All in for Duchenne 2015 1 Reply
Started by Tammy Henegar. Last reply by Tony and Jen Dumm Jan 16, 2015.
Ice bucket challenge 3 Replies
Started by Mike O. Last reply by Judy Lumbourne Nov 18, 2014.
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