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Research
Exchange information on the latest in Duchenne research View Discussions
For those of you who travel out of state for neurologists (Wong, etc) 6 Replies
Started by Tracey Daniel. Last reply by Keith Van Houten May 16.
NEW VIDEO TODAY: Max is in the Sarepta Eteplirsen Trial!
Started by arnold May 16.
CEO of Sarepta: We believe the FDA will partner with us to get this product to patients who need it 1 Reply
Started by arnold. Last reply by arnold May 10.
Prosensa's PRO045
Started by wainaina muiruri May 8.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
FDA Approval of Exon Skipping 86 Replies
Started by Paul Cliff. Last reply by Paul Cliff May 3.
Senator Collins Mourns the Passing of Matthew Denger
Started by PPMD Feb 27.
Mother and son who fought the FDA are now fighting the state 4 Replies
Started by arnold. Last reply by arnold Feb 18.
Pat Furlong featured in Belle of Steel interview for AgeView Press
Started by Jeanette Vaughan Aug 29, 2012.
Add your story to PPMDs 2012 Advocacy Effort with a flyer 3 Replies
Started by Gail D. McVicker. Last reply by Gerardo Javier reynoso Jul 1, 2012.
Education
Share information on learning about Duchenne View Discussions
IEP for middle school 3 Replies
Started by Lynn Bartels. Last reply by amit gupta May 13.
Are we doing everything we should be doing? 3 Replies
Started by Amanda Cushman. Last reply by Amanda Cushman Apr 25.
Back issues 6 Replies
Started by Alissa. Last reply by Tammy Henegar Apr 1.
Recess 7 Replies
Started by Linda Currier. Last reply by Mitch & Jodi Nichols Mar 15.
Newly Diagnosed DMD in Singapore & Care Plan 8 Replies
Started by Nellie Guillory. Last reply by Sharyn Thompson Mar 5.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Has anyone taken a Zappy Scooter through the airport/onto a plane? 3 Replies
Started by Regina. Last reply by Jason G May 10.
Used McLaren Masters Special Needs Stroller 9 Replies
Started by MarcosDad. Last reply by Lynn Lenox May 6.
advice on home lifts
Started by Tulika Apr 23.
Best way to shop for Handicap Van 8 Replies
Started by Lisa Groeger. Last reply by Evelyn Apr 11.
Bathroom Modifications - Do I really want/need a roll-in shower? 10 Replies
Started by Tamara Walters. Last reply by tom evans Apr 4.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Raising money during tandem 5k/10k runs (Northern California) 5 Replies
Started by David. Last reply by David Feb 8.
Starting a Nonprofit Organization vs. Private Foundation for Fundraising 13 Replies
Started by Jeff Kopp. Last reply by bob Sep 17, 2012.
Three kids of same family with muscular dystrophy need help
Started by SAHHID ZUBAIR Aug 25, 2012.
How to Organize a 5K fun run/walk 3 Replies
Started by Donna. Last reply by Lisa Jones Jan 11, 2012.
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