Discussions
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Research
Exchange information on the latest in Duchenne research View Discussions
Sarepta Phase III??? 5 Replies
Started by Wendy Kelly. Last reply by Richard Darienzo 9 hours ago.
Tadalafil phase 3 trial Eli Lilly & Co. 17 Replies
Started by Phil. Last reply by Mindy yesterday.
Duchenne and Epilepsy
Started by mehrzad haidari on Wednesday.
Petition to Approve the Orphan Drug Regulatory Framework in Canada
Started by Andrea Cleary on Tuesday.
Exon skipping and rarer deletions 6 Replies
Started by Maggie. Last reply by Maggie on Sunday.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 3 Replies
Started by micro kid. Last reply by Tommy Paine on Wednesday.
Need a favor ....
Started by Samantha Altilio Jan 6.
Innovative Telehealth Initiative
Started by David Steinhorn Jan 2.
Mother and son who fought the FDA are now fighting the state 6 Replies
Started by arnold. Last reply by wainaina muiruri Jul 13, 2013.
FDA Approval of Exon Skipping 86 Replies
Started by Paul Cliff. Last reply by Paul Cliff May 3, 2013.
Education
Share information on learning about Duchenne View Discussions
Question about gonadal mosaicism 4 Replies
Started by Maggie. Last reply by Janine Feb 10.
Non Carrier Mother with 3 sons living with DMD! 4 Replies
Started by PAULA KERR. Last reply by PAULA KERR Feb 1.
Fat Embolism 4 Replies
Started by Fred Luchetti. Last reply by Kathi Kinnett Jan 21.
College Transition 12 Replies
Started by Tayjus Surampudi. Last reply by Fred Luchetti Jan 14.
Technology for Writing 5 Replies
Started by Linda Currier. Last reply by Janine Oct 26, 2013.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Standing Wheelchair 8 Replies
Started by Arthur Carr. Last reply by Arthur Carr on Tuesday.
how do you deal with everyday life moving your kid from a place to another ? 4 Replies
Started by Michele LAU. Last reply by Fred Luchetti Jan 20.
Pants for boys in wheelchairs 11 Replies
Started by Mandy. Last reply by Mandy Jan 14.
Arm pads for wheelchairs? 3 Replies
Started by Barbara. Last reply by Keith Van Houten Jan 12.
Mobility devices for races 7 Replies
Started by Sara Clime. Last reply by Leeandra Arhdeacon Nov 18, 2013.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Virtual Run to Benefit Parent Project Muscular Dystrophy 6 Replies
Started by Laura Pita. Last reply by Andrew Kerr Nov 24, 2013.
Volley for a Cure MD - End Duchenne
Started by Donna Oct 21, 2013.
Raising money during tandem 5k/10k runs (Northern California) 5 Replies
Started by David. Last reply by David Feb 8, 2013.
Starting a Nonprofit Organization vs. Private Foundation for Fundraising 13 Replies
Started by Jeff Kopp. Last reply by bob Sep 17, 2012.
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