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Research
Exchange information on the latest in Duchenne research View Discussions
Non-Contiguous Mutations
Started by Ashlie Robinson Feb 19.
3yr old looking for suggestions 1 Reply
Started by Jennifer. Last reply by Nicole Herring Jan 20.
Success Stories for exon 52 drug
Started by william flannery Mar 12, 2020.
Latest Webinar on Gene therapy 2 Replies
Started by william flannery. Last reply by william flannery Mar 12, 2020.
Manifesting carriers 1 Reply
Started by Lori. Last reply by Karen Gabel Jan 29, 2020.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
FDA: Approve Vyondys 53 (Golodirsen) for the treatment of Duchenne Muscular Dystrophy
Started by Jacob Hill Sep 20, 2019.
Access to Translarna - a lego movie 1 Reply
Started by Marks33. Last reply by Mike O Feb 11, 2015.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7, 2014.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11, 2014.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11, 2014.
Education
Share information on learning about Duchenne View Discussions
scoliosis 2 Replies
Started by Joy Narmore. Last reply by Brenda Sep 2, 2016.
Cognitive Delay
Started by Stephanie Wimbish Aug 29, 2016.
IEP in state of Maryland 2 Replies
Started by Debby Meyers McGee. Last reply by Elizabeth Carr Sep 25, 2015.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Experience of living with DMD
Started by Averill Finn Nov 8, 2019.
foldable elecrtic wheel chair 3 Replies
Started by ahmed Sayed Abdel Gawad. Last reply by Shawn Feb 23, 2019.
anyone 20 years or older with DMD still walking? 16 Replies
Started by Dakota Ferrazzi. Last reply by Sai Chand. Gurujala Jul 4, 2018.
Adaptive Fishing Gear? 2 Replies
Started by Michele. Last reply by David Mar 9, 2018.
When should we think about getting a chair lift 2 Replies
Started by marie noblett. Last reply by marie noblett Mar 8, 2018.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Pinball World Record Fundraiser in San Francisco, April 18th and 19th!
Started by Jeffrey Matucha Feb 10, 2020.
PPMD as Charity of Choice on Amazon Smile
Started by Jeffrey Kopp Sep 20, 2016.
Everest to End Duchenne 2 Replies
Started by Gregg Kaloust. Last reply by Gregg Kaloust Sep 30, 2015.
Three kids of same family with muscular dystrophy need help 2 Replies
Started by SAHHID ZUBAIR. Last reply by SAHHID ZUBAIR Aug 22, 2015.
All in for Duchenne 2015 1 Reply
Started by Tammy Henegar. Last reply by Tony and Jen Dumm Jan 16, 2015.
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