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Research
Exchange information on the latest in Duchenne research View Discussions
Results in & deflazacort 16 Replies
Started by Dawn Steele. Last reply by Dawn Steele 13 hours ago.
Does Idebenone have something to do with behaviours and cognitive issues? 5 Replies
Started by Moein. Last reply by Moein 14 hours ago.
Sarepta Therapeutics Reports Long-Term Outcomes Through 144 Weeks 4 Replies
Started by Jason Darienzo. Last reply by Jason Darienzo Jul 16.
Moving to the US. Which city could be a good place for Duchenne management? 5 Replies
Started by Rahul Singh. Last reply by Rupjani B Jul 14.
Eplerenone 4 Replies
Started by Chris Diemler. Last reply by David Jul 10.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 54 Replies
Started by Jason Darienzo. Last reply by micro kid May 7.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11.
Need a favor ....
Started by Samantha Altilio Jan 6.
Innovative Telehealth Initiative
Started by David Steinhorn Jan 2.
Education
Share information on learning about Duchenne View Discussions
Test for evaluating learning disablity 9 Replies
Started by Amrit. Last reply by David yesterday.
writing assignments 8 Replies
Started by Sara Savalli. Last reply by wainaina muiruri Jul 5.
Early Literacy Intervention 3 Replies
Started by Chad Campbell. Last reply by Aimee Ealy Apr 30.
Basic Genetics for DMD 2 Replies
Started by Janine. Last reply by Mena Shaher Apr 23.
Question about gonadal mosaicism 4 Replies
Started by Maggie. Last reply by Janine Feb 10.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
Pool Lifts 4 Replies
Started by Linda Meehan. Last reply by Linda Meehan on Tuesday.
Need help, what is the best vehicle for DMD? 5 Replies
Started by juan banuelos. Last reply by juan banuelos Jul 15.
Going to the bathroom on a plane 2 Replies
Started by Manu Gambhir. Last reply by Manu Gambhir May 5.
suggestions on beds/mattresses that rotate?
Started by Prasad Surampudi Mar 16.
how do you deal with everyday life moving your kid from a place to another ? 5 Replies
Started by Michele LAU. Last reply by Michael Piacentino Mar 10.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Fundraiser help for Rivera family
Started by Lacey rivera Jul 16.
Fundraising thru amazon shopping
Started by Bobby Vandalore Jul 12.
Joining jack
Started by Steven Jun 11.
Virtual Run to Benefit Parent Project Muscular Dystrophy 6 Replies
Started by Laura Pita. Last reply by Andrew Kerr Nov 24, 2013.
Volley for a Cure MD - End Duchenne
Started by Donna Oct 21, 2013.
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