Discussions
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Research
Exchange information on the latest in Duchenne research View Discussions
Tivorsan - Biglycan 3 Replies
Started by Prakash. Last reply by Prakash on Friday.
Regenerating muscle in Duchenne muscular dystrophy: age matters 2 Replies
Started by Jason Darienzo. Last reply by Nadja on Wednesday.
Why isn't Duchenne being given same consideration as AIDS? 5 Replies
Started by Richard Darienzo. Last reply by Jason Darienzo on Tuesday.
Eplerenone 3 Replies
Started by Chris Diemler. Last reply by amit gupta on Tuesday.
Sarepta scenarios for moving forward 1 Reply
Started by Jason Darienzo. Last reply by Maggie Apr 13.
Advocacy
Share ideas on involvement in Duchenne advocacy View Discussions
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne. 50 Replies
Started by Jason Darienzo. Last reply by Bernardo A. Iriberri Mar 28.
PLEASE SIGNT FDA SAY YES PETITION AND ENCOURAGE OTHERS TO DO IT 4 Replies
Started by micro kid. Last reply by PPMD Mar 11.
The Whitehouse.gov Petition asking the FDA to Accelerate Approval of treatments for Duchenne 2 Replies
Started by Richard Darienzo. Last reply by PPMD Mar 11.
Need a favor ....
Started by Samantha Altilio Jan 6.
Innovative Telehealth Initiative
Started by David Steinhorn Jan 2.
Education
Share information on learning about Duchenne View Discussions
Basic Genetics for DMD
Started by Janine on Tuesday.
Question about gonadal mosaicism 4 Replies
Started by Maggie. Last reply by Janine Feb 10.
Non Carrier Mother with 3 sons living with DMD! 4 Replies
Started by PAULA KERR. Last reply by PAULA KERR Feb 1.
Fat Embolism 4 Replies
Started by Fred Luchetti. Last reply by Kathi Kinnett Jan 21.
College Transition 12 Replies
Started by Tayjus Surampudi. Last reply by Fred Luchetti Jan 14.
Accessibility and Disability Issues
Discuss issues relating to accessability View Discussions
suggestions on beds/mattresses that rotate?
Started by Prasad Surampudi Mar 16.
how do you deal with everyday life moving your kid from a place to another ? 5 Replies
Started by Michele LAU. Last reply by Michael Piacentino Mar 10.
Standing Wheelchair 8 Replies
Started by Arthur Carr. Last reply by Arthur Carr Mar 3.
Pants for boys in wheelchairs 11 Replies
Started by Mandy. Last reply by Mandy Jan 14.
Arm pads for wheelchairs? 3 Replies
Started by Barbara. Last reply by Keith Van Houten Jan 12.
Fundraising
Share ideas about fundraising for Duchenne View Discussions
Virtual Run to Benefit Parent Project Muscular Dystrophy 6 Replies
Started by Laura Pita. Last reply by Andrew Kerr Nov 24, 2013.
Volley for a Cure MD - End Duchenne
Started by Donna Oct 21, 2013.
Raising money during tandem 5k/10k runs (Northern California) 5 Replies
Started by David. Last reply by David Feb 8, 2013.
Starting a Nonprofit Organization vs. Private Foundation for Fundraising 13 Replies
Started by Jeff Kopp. Last reply by bob Sep 17, 2012.
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