Cardiac webinar series: Part 1- Monitoring heart disease in Duchenne and carrier moms/daughters

Event Details

Cardiac webinar series:  Part 1- Monitoring heart disease in Duchenne and carrier moms/daughters

Time: September 26, 2012 from 1pm to 2pm
Location: Online Webinar from 1-2 pm Eastern Time Zone
Website or Map: http://www.readytalk.com/
Phone: 866.740.1260 -- Access code: 9449985
Event Type: webinar, cardiac webinar series
Organized By: PPMD
Latest Activity: Oct 17, 2012

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Event Description

Cardiac care and cardiomyopathy remain major areas of interest and concern for all people with Duchenne. While advances in respiratory care have improved respiratory outcomes, dilated cardiomyopathy and heart failure remain the leading cause of death in Duchenne. Cardiomyopathy is a potential risk for mothers and daughters who have been diagnosed as carriers. Carriers should be informed of the need for ongoing screening and care. 

 

Join us for part one of our cardiac webinar series:

Monitoring heart disease in Duchenne and carrier moms/daughters
September 26, 2012 – 1pm eastern

Dr. Linda Cripe (Nationwide Children’s Hospital, Columbus, OH)
Dr. Kan Hor  (Cincinnati Children's Hosptial, Cincinnati, OH)

Topics:

  • Screening of patients with Duchenne and Carriers: EKG, echo, cardiac MRI, Holter monitoring: What they measure, when to start, how often to repeat
  • Cardiac trials

To Participate:

  1. Visit ReadyTalk.com and use participant code 9449985. (Be sure to test your computer beforehand)
  2. Audio Dial-In Information:
    • U.S. & Canada: Dial 866.740.1260 and use the Access Code 9449985
    • Outside the U.S. and Canada: Lookup your number

 

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Comment by PPMD on September 28, 2012 at 11:38am

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