Webinar: FOR-DMD Study - Developing Standardized Corticosteroid Treatment for Duchenne Muscular Dystrophy

Event Details

Webinar: FOR-DMD Study - Developing Standardized Corticosteroid Treatment for Duchenne Muscular Dystrophy

Time: April 15, 2015 from 1pm to 2pm
Location: Online Webinar - Eastern Time Zone
Website or Map: http://www.readytalk.com/
Phone: 866.740.1260 -- Access code: 9449985
Event Type: webinar
Organized By: PPMD
Latest Activity: Apr 15, 2015

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Event Description

Wednesday, April 15, 2015 from 1pm to 2pm EDT

Corticosteroids are the only treatment documented to improve strength and increase muscle mass in boys with Duchenne muscular dystrophy (Duchenne). Despite an American Academy of Neurology practice guideline and Cochrane report recommending their use, corticosteroid use is haphazard in timing, dosage schedule, and duration and in some countries not prescribed to most patients. The FOR-DMD study examines the three most commonly prescribed corticosteroid regimens. This webinar will include a presentation of the aims of the FOR-DMD study, along with discussion of why the study is particularly relevant in regard to current/future DMD clinical trials. A parent of one of the FOR-DMD study subjects will be available for participant questions, as well.

Questions

Questions can be submitted in advance to info@parentprojectmd.org (subject line: FOR-DMD Webinar).

Speakers:

  • Dr. Robert Griggs, co-Investigator of the trial, University of Rochester Department of Neurology
  • Dr. Emma Ciafaloni, local Principal Investigator, University of Rochester Department of Neurology
  • Kimberly Hart, M.A., Project Manager

To Participate:

  1. Visit ReadyTalk.com and use participant code 9449985. (Be sure to test your computer beforehand)
  2. Audio Dial-In Information:
    • U.S. & Canada: Dial 866.740.1260 and use the Access Code 9449985
    • Outside the U.S. and Canada: Lookup your number

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