As part of our Every Single [One] Tour and to expand on the success of PPMD’s FACES program, we will launching a new FACES group in Lincoln, Nebraska in early April. This will give us an opportunity to connect the large number of families in the area who are living with Duchenne, as well as provide updates on research, advocacy, and care. We are also interested to learn about the diagnostic journey these families have been on thus far, in order to figure out ways to improve early diagnosis and early interventions.
FACES is an acronym that stands for Families Advocating, Connecting, Educating, and Supporting. Duchenne FACES is the official parent led outreach initiative of PPMD.
FACES outreach locations offers families affected by Duchenne and Becker a regional PPMD point of contact, as well as, serve as a volunteer extension of the PPMD central office. A Volunteer Coordinator(s) is chosen to head up each FACES location, and groups are required to hold meetings every other month.