Time: January 17, 2014 all day
Location: The Woodlands Resort
Street: 2311 N Millbend Dr.
City/Town: The Woodlands, TX 77380
Website or Map: http://www.parentprojectmd.or…
Event Type: golf, outing
Organized By: Scott Hehr | firstname.lastname@example.org
Latest Activity: Dec 23, 2013
When: Friday, January 17th
Where: Panther Trail
The Woodlands Resort
2311 N Millbend Dr
The Woodlands, TX 77380
Why: With your generous help, we will raise awareness and research funds for the thousands of boys afflicted with Duchenne Muscular Dystrophy (100% fatal disease). The inspiration for the tournament is Grant Meermann (age 7), and the purpose is to benefit Duchenne MD. Unfortunately,Duchenne MD is a brutally degenerative disease. Over time, these boys lose all muscle function and typically die in their early 20s. Although,Duchenne MD is the most common fatal genetic disease in children, there are currently no effective treatments available. You can help change this outcome.
All proceeds go to Parent Project Muscular Dystrophy (PPMD), which is the leading organization funding research for therapies and a cure forDuchenne MD. The outlook looks promising, as there are more ongoing clinical trials and a deeper research pipeline than ever before. Because of your support, there is real hope for Grant and other boys with Duchenne MD. Thanks for your participation -- we look forward to you having a fun day while supporting this great cause!
For more information on how to donate or to register visit the Ekdor Golf Website.