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Cardiac webinar series: Part 4 - Care for adults living with Duchenne

Event Details

Cardiac webinar series: Part 4 - Care for adults living with Duchenne

Time: March 6, 2013 from 2pm to 3pm
Location: Webinar from 2-3 pm Eastern Time Zone
Website or Map: http://www.readytalk.com/
Phone: 866.740.1260 -- Access code: 9449985
Event Type: webinar, cardiac webinar series
Organized By: PPMD
Latest Activity: Mar 6, 2013

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Event Description

Cardiac care and cardiomyopathy remain major areas of interest and concern for all people with Duchenne. Cardiac care changes throughout the life span of Duchenne. Because the heart is a muscle too, it is affected by a lack of dystrophin just as are the skeletal muscles. And, just as there are variations in onset of skeletal muscle difficulties, there are variations in the onset of cardiac muscle difficulties. Eventually, however, nearly 100% of all boys develop dilated cardiomyopathy and heart failure.

 

Join us for part four of our cardiac webinar series:

Cardiac care for adults living with Duchenne

Wednesday, March 6, 2:00 – 3:00 EST

 

  • Dr. Beth McNally – University of Chicago
  • Dr. Reid Thompson – Johns Hopkins Children's Center



Topics:

  • Adult cardiac surveillance
  • Multiple organ surveillance in adults
  • Medical heart failure management
  • Mechanical heart failure management in adults 
  • Is cardiac transplant an option
  • Cardiac surveillance for carriers 

To Participate:

  1. Visit ReadyTalk.com and use participant code 9449985. (Be sure to test your computer beforehand)
  2. Audio Dial-In Information:
    • U.S. & Canada: Dial 866.740.1260 and use the Access Code 9449985
    • Outside the U.S. and Canada: Lookup your number

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