2016 Advocacy Conference

Event Details

2016 Advocacy Conference

Time: February 21, 2016 to February 23, 2016
Location: Washington, D.C.
Event Type: conference
Organized By: PPMD
Latest Activity: Feb 15, 2016

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Event Description

PPMD's 2016 Advocacy Conference, February 21-23 registration is now open!  Visit the registration site today


Come and advocate for Duchenne directly with Members of Congress. Our annual Advocacy Conference continues to yield results for the Duchenne community.

Over the last 15 years our Advocacy has resulted in...

  • A full and promising Duchenne drug development pipeline with nearly 20 potential therapies in clinical testing and several others in earlier stages of development. 
  • Over $250 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care being established for all those diagnosed with Duchenne, which has markedly improved the quality of life and expanded the average life by 10 years.

With the recent passage of the MD-CARE Act Amendments of 2014 and an election around the corner it is now more important than ever to raise our voices on Capitol Hill. 

We hope you can join us in DC.  

Registration now available

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