2013 WINTERSKÖL HIKE FOR HOPE

Event Details

2013 WINTERSKÖL HIKE FOR HOPE

Time: January 13, 2013 all day
Location: "Aspen, CO"
Website or Map: http://www.hikeforhopemd.com/
Event Type: hike, fundraiser
Organized By: The Sharp Family
Latest Activity: Dec 17, 2012

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Event Description

2013 WINTERSKÖL HIKE FOR HOPE
HELP FIND A CURE FOR MUSCULAR DYSTROPHY
SUNDAY, JANUARY 13th, Start Time: 7:30 a.m.
BUTTERMILK MOUNTAIN, ASPEN, COLORADO

GREAT STRIDES!!! THANK YOU for your support! We are so grateful for your donations, registration fees, sponsorships and the volunteering of your valuable time toward our efforts. Your generosity has and will go directly to the most promising Muscular Dystrophy specific research, which gives our boys hope for a better tomorrow. 

BECAUSE OF YOU we are much closer to a true treatment for Muscular Dystrophy. New results from Sarepta Therapeutics (formerly AVI BioPharma) that its exon-skipping compound, eteplirsen, achieved significant clinical benefit after 48 weeks of treatment in a Phase IIb study in Duchenne muscular dystrophy. Click to read the whole study. 

THERE IS MORE RESEARCH that needs to be done and funds that are needed to fuel that research. 

COME ON OUT and join us for the NINTH annual Buttermilk Uphill and have some fun while supporting research for this devastating muscle disease.

For more information, click here.

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