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Growing Our Team

Posted by Pat Furlong on February 1, 2016 at 9:43am 0 Comments

We are not a team because we work together. We are a team because we respect, trust, and care for each other. – Vala Afshar

 

I am the first person to admit that I don’t know much about a lot of different things. But I do know talent when I see it. And I could not be…

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Latest Activity

Jay Griffin replied to sulthana shaik's discussion Answering questions from strangers
"Sometimes saying less is really saying more. I don't think you need to explain.."
5 hours ago
sulthana shaik posted a discussion

Answering questions from strangers

HiMy son is 10 years old with Duchenne . He has learning disability as well. He has a very short statute.I am in a very uneasy situation when strangers ask about his grade.When I say he is in 5th grade, they have a look of astonishment on their face,Don't want to gain sympathy by Saying that he is in special ed .Can you guys give me any suggestions, to get out of such situations?Thank youSee More
9 hours ago
Moein replied to Tammy's discussion Nightly Protein/Amino Acid Supplementation helps reduce muscle breakdown
"I think he is okay "
yesterday
Abby Bronson is now a member of PPMD Community
yesterday
Jay Griffin replied to Andrew Kerr's discussion Interesting Research - May explain why so far, exon-skipping isn't seeing the results we'd hoped for.
"Good read....Thanks for sharing"
Saturday
Andrew Kerr posted a discussion
Saturday
Jay Griffin replied to Tammy's discussion Nightly Protein/Amino Acid Supplementation helps reduce muscle breakdown
"How is your son doing on the myostatin inhibitor trial?  "
Saturday
Jay Griffin commented on PPMD's blog post Catabasis Pharmaceuticals Announces Positive Top-Line Results from Part A of the MoveDMD Trial, a Phase 1 / 2 Trial of CAT-1004 for Duchenne
"It is our hope to participate in this trial! "
Saturday
Jason Darienzo shared PPMD's blog post on Facebook
Friday
Jason Darienzo commented on PPMD's blog post Lilly Trial Finishes With Disappointing Results
"We need to encourage drug companies to continue extension studies beyond 48 weeks.  I believe the DMD community must reexamine short 48 week clinical trials. We are starting to see a pattern of failures here.   It must…"
Thursday

Staff
PPMD posted an event
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2016 Unionville Run For Our Sons 5k at Charles F. Patton Middle School

April 16, 2016 all day
Date:  Saturday, April 16, 2016 Time: 9:00 AM race time (8:00 AM registration opens) Amenities : Technical T-shirt guaranteed for paid pre-registration by April 4th and available while supplies last on race day. Door Prizes and Raffle Prizes as well as refreshments available. Awards for overall age group winners and all kids dash participants. Family Fun Day events ongoing including kids crafts, games, clown and face painting. Location:  Charles F. Patton Middle School, Kennett Square, PA …See More
Thursday
Mariana Mitreva shared PPMD's blog post on Facebook
Wednesday
Jay Griffin replied to Yasha Singh's discussion Reduced CPK
"All, My son is 6 yrs old.   We are not on steroids yet also.  We are waiting for the VBP-15 trial to open up.  It looks like it will be around March from my understanding. We are now considering the CAT-1004 trial.  I am…"
Wednesday
Henry Linter joined Kari's group
Wednesday

Staff
PPMD posted a blog post

Lilly Trial Finishes With Disappointing Results

Lilly has now completed one of the largest clinical trials in Duchenne (330 patients) with disappointing results. Today the company reports that their Phase 3 study of tadalafil failed to provide evidence for efficacy in slowing decline in walking ability in boys with Duchenne. Subsequently, the company has made the decision to discontinue the open-label extension. The full update to the community is below. Sadly, this is one more blow for this community. We are deeply grateful to all of the…See More
Wednesday

Staff
Pat Furlong's blog post was featured

Growing Our Team

We are not a team because we work together. We are a team because we respect, trust, and care for each other. – Vala Afshar I am the first person to admit that I don’t know much about a lot of different things. But I do know talent when I see it. And I could not be more proud of the team of passionate, dedicated leaders I have…See More
Tuesday
 
 
 

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