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Latest Activity

Michael Kessler, Susan Wingfield Alphousns, Leslie McIntyre and 2 more joined PPMD Community

Wednesday

Leslie McIntyre favorited Angie Evans's discussion Who pays for your deflazacort?

Oct 8

Ankur Handa replied to Ankur Handa's discussion Emplaza in US

"I called Masters and they do not ship any more. Planning to get it from India as it should be possible with a US doctors prescription. "

Oct 6

Peter replied to Ankur Handa's discussion Emplaza in US

"Is it an opton to come to Europe and bring back supply for some time?"

Oct 4

Laura C. McCallum is now a member of PPMD Community

Oct 3

Welcome Them!

Ankur Handa posted a discussion

Emplaza in US

The cost of the medication is more than $10,000 for a 30 day supply. Insurance has also rejected it. So, wanted to check if there is a better way to get the deflazacort in the US if we can't get it from Emplaza?Any suggestions?See More

Sep 25

2 Comments 0 Favorites

Praveen commented on Eileen DeLong's group Exon Deletion 3-7

"All - There is a facebook group for Exon 3-7 deletion. Please join this group. https://www.facebook.com/groups/120669448584316/"

Sep 13

Eileen DeLong replied to James's discussion exons 3 - 7

"Hi, Jared is now 19 and Calvin is 22 both still walking. Seeing Dr. Wong in November. So lucky she moved closer to us since we had to stop seeing her due to insurance change. They both have problem with anxiety but doing well mostly."

Sep 13

Philip Weiss and Marsha Schattner joined PPMD Community

Sep 11

Shannon Cooley joined Eileen DeLong's group