My six and a half year old I thought was potty trained a year and a half ago but I think I was wrong. He has always had problems going poop on the potty and has accidents in his pull ups which we are okay with as they were not frequent. Last two weeks he has not used the bathroom at school and just pee's in his pull up. He refuses to go at school. At home, he will use the potty when asked or sometimes when he has to pee. I am not sure what to do as pull ups are expensive and he's almost 7 and…See More
Ask you doctor first to order blood test for vitamin D3 and Calcium level .Based on that you will get to know how much your son needs vitamin and calcium.My son is 11 year old ,diagnosed at age of 9 ,he needs 3000 IU vitamin D3 so we are giving…"
"Hello, I know this is overwhelming. I am going to send you an I.M so look for it. My son is 6 Will be 7 in July. We give him his multivitamin, vitiman D... If you are on Facebook. I will look for you now. Most of us are there and you can get a bunch…"
"Any update on Ataluren. It's been approved in the UK now! Can we please do something about it, how do we raise our voices and be heard on this drug. It's torture to know that there is a drug out there than can help but access to it is…"
Hello All,Is there anyone out there struggling with finding assisted living for themselves or a young adult with DMD. I have heard of Congregate Living Facilities, which provide nursing care, however, only have 12 people or less, and can be more like a home than the traditional Skilled Nursing Facilities. The advantage is they can be like a home setting/dorm, with activities, outings etc, that can meet the social/emotional needs of young adults.I am in the Los Angeles area, and the social…See More