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Sam joined PPMD's group

Adolescence (age 7-12)

Jun 11

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Marian Lamberson favorited Marian Lamberson's profile

Mar 19

Catherine McHale is now a member of PPMD Community

Dec 29, 2021

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Dec 13, 2021

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Emila Blaush and Celeste Ferber joined PPMD Community

Dec 2, 2021

Nithya commented on Holly Cahoon's group Exon Deletion 52

"Hello Everyone My son Aditya is 8year old and has single exon 52 deletion.We are looking for exon skipping therapy.Is anyone of you getting exon skipping therapy done for your kids.Any inputs on this would be very helpful."

Dec 1, 2021

Nithya joined Holly Cahoon's group

Exon Deletion 52

Dec 1, 2021

18 Comments 1 Favorite

Nithya is now a member of PPMD Community

Nov 30, 2021

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Cynthia Eden is now a member of PPMD Community

Oct 29, 2021

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Nikia Showers joined PPMD's group

Adolescence (age 7-12)

Oct 13, 2021

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Nikia Showers and Kyla Hess joined PPMD Community

Oct 13, 2021

Peter commented on PPMD's blog post Pfizer Doses First Patient Using Investigational Mini-Dystrophin Gene Therapy for the Treatment of Duchenne Muscular Dystrophy

"Any new data on that?"

Oct 9, 2021

Ramadevi posted a discussion

Chest muscle pain

My son is complaining of pain at the chest area, muscle pain. Tenderness is there.Applying heat pack and giving pain medication.It goes but comes back in between.Anyone have any suggestions ? Please let me knowSee More

Sep 30, 2021

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Abby Bronson and Ramadevi joined PPMD Community

Sep 29, 2021

james asc is now a member of PPMD Community

Sep 14, 2021

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