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Latest Activity

Nikki is now a member of PPMD Community

yesterday

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Kevin replied to James's discussion exons 3 - 7

"Hi All, My son was diagnosed with exons 3-7 deletion last year at age 8. He has muscle weakness and ADHD, but otherwise doing pretty well. This thread has been very helpful for me understanding this specific deletion. Just wondering if…"

Monday

Ron is now a member of PPMD Community

Aug 1

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Jason Darienzo posted a discussion

Heat therapy boosts mitochondrial function in muscles

Could help with hand function?. PPMD should look at this. Heat therapy boosts mitochondrial function in muscles See More

Jul 31

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Lori is now a member of PPMD Community

Jul 30

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Sai Chand. Gurujala commented on PPMD's blog post Pfizer Doses First Patient Using Investigational Mini-Dystrophin Gene Therapy for the Treatment of Duchenne Muscular Dystrophy

"Hi All, Anybody please share. How is the improvement now."

Jul 23

Nauman Ali and Peter joined PPMD Community

Jul 19

Susan Caldwell joined PPMD's group

Adolescence (age 7-12)

Jul 12

12 Comments 3 Favorites

Jason Darienzo replied to Jason Darienzo's discussion Summit Announces PhaseOut DMD Did Not Meet Primary Endpoint

"Summit giving up too fast. "

Jul 11

Jason Darienzo posted a discussion

Summit Announces PhaseOut DMD Did Not Meet Primary Endpoint

Summit Announces PhaseOut DMD Did Not Meet Primary EndpointEzutromid Development to be DiscontinuedSummit to Focus on Advancing its Pipeline of New Mechanism Antibiotics Conference Call Scheduled for 8:00am EDT / 1:00pm BSTOxford, UK, and Cambridge, MA, US, 27 June 2018 - Summit Therapeutics plc (AIM:SUMM, NASDAQ:SMMT) today announces PhaseOut DMD has not met its primary or secondary endpoints after 48 weeks of treatment of ezutromid in patients with Duchenne muscular dystrophy ('DMD').…See More

Jul 11

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Dana j Moore is now a member of PPMD Community

Jul 11

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Yağmur Balım Urem is now a member of PPMD Community

Jul 6

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Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?

"Hi Donna, How is your Son doing? Still on deflazacort?"

Jul 4

Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?