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Tamoxifen

Started by Galia Ben Ishay in Research. Last reply by Shady Jun 17. 33 Replies

Key to muscle regeneration discovered

Started by Jason Darienzo in Research. Last reply by Jason Darienzo Jun 15. 2 Replies

IV port for exon 51

Started by Kirubha Balakumar in General Discussion. Last reply by Catherine Lake Jun 2. 1 Reply

WHAT WILL HAPPEND IF DUCHENN BOYS GENDER CHANGE

Started by vijender bajaj in Research. Last reply by Bernardo A. Iriberri May 25. 1 Reply

Latest Activity


Staff
Abby Bronson posted a blog post

PPMD Research Update: June 2017

An Overview of Your Impact in Action We are less than a week away from PPMD’s Annual Connect Conference, where researchers and industry from around the world will provide our community with the latest updates on current and potential Duchenne therapies.As we gear up for what promise to be…See More
Friday
Emily Wiebe joined Lisa Jones's group
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DMD/BMD Siblings

Siblings of those who have DMD or BMD.
Thursday
Emily Wiebe joined PPMD's group
Thursday

Staff
Ryan Fischer posted a blog post

PPMD Launches New Resource Center for Families

Navigating life with Duchenne can be daunting and time consuming for families. We rely on each other to share wisdom and information in order to make the process smoother and life a bit easier. The best guidance we can get is from those who have been through a given situation, sharing what they’ve learned to help others navigate resources that exist. PPMD strives to find better ways to assist families with their journey. With…See More
Wednesday
Profile IconEleanor Carter and Patricio Adducol joined PPMD Community
Jun 19
Shady replied to Galia Ben Ishay's discussion Tamoxifen
"Wishing your son and all of our sons a good health forever"
Jun 17
ramon ciriaco viaña ortiz posted a blog post

JOSE DAVID VIAÑA DIAZ CARTAGENA COLOMBIA

HOLA  MI  HIJO JOSE DAVID  NECESITA DE SU APOYO  SOMOS  UNA  FAMILIA DE ESCASOS  RECURSOS  ECONOMICOS  DE CARTAGENA  COLOMBIA  ,ERAN  DOS HERMANOS  CON  DUCHENNE  YA FALLECIO  UNO EL  1 DE DICIEMBRE DEL  2011 A  LOS  17  AÑOS  .POR LA  FALTA  DE  UNA  BUENA  ALIMENTACION  Y  LA  CASA  EN  MAL  ESTADO  LE  DIO  UNA  FUERTE  NEUMONIA  EL  CUAL  LE  PROBOCO  EL  PARO  RESPIRATORIO...POR  FAVOR  AYUDEN  A  MI  OTRO  HIJO   CON  DUCHENNE  JOSE DAVID  VIAÑE DIAZ  A  QUE  TENGA  UNA  MEJOR CALIDAD  DE…See More
Jun 16
Jason Darienzo replied to Jason Darienzo's discussion Key to muscle regeneration discovered
"There is a researcher Dr. Helen Blau at Standford University that has shown stem cell depletion is a major problem and working on ways to reverse it.  However, if exon-skipping, utrophin modulation or both are started early stem cell depletion…"
Jun 15
Tommy B# replied to Jason Darienzo's discussion Key to muscle regeneration discovered
"Hi, I'm new. Well, not really, but I have been reading quietly the last three years.Sorry for hijacking your thread, might or might not do it again. :-B The good thing is that by now there seems to be more therapies researched than I can keep…"
Jun 15
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Shady, After improving it seems that he has stabilized now. I hope it will be forever..."
Jun 15

Staff
PPMD posted blog posts
Jun 15

Staff
Ryan Fischer posted a blog post

65 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget

With Congress not wrapping up spending bills for Fiscal Year 2017 until we were more than 7 months into the fiscal year, the FY 2018 budget and appropriations (funding) cycle will be interesting to say the least. The Trump Administration released a preliminary — or “skinny” budget -- in March but did not release a more…See More
Jun 15
Jason Darienzo posted a discussion
Jun 14

Staff
Pat Furlong posted a blog post

Celebrate Dad & Your Gift is Doubled!

This Father’s Day, I hope you will join me in celebrating the dads in this community. They are often the unsung heroes of our community. They are role models for our sons, providing for our families. Their hearts ache just as profoundly when our children are hurting. Their hearts love just as unconditionally.That’s why this Father’s Day, I am asking you to celebrate the men in your…See More
Jun 14
Kara Villeneuve is now a member of PPMD Community
Jun 14

Staff
PPMD posted a blog post

PPMD’s #EverySingleOne Tour: Gainesville, FL

PPMD's Pat Furlong  Earlier this month, we had the privilege of having our fourth stop in 2017 on PPMD's Every Single One Tour in Gainesville, Florida. We were excited to be able to meet with many families and professionals to discuss issues around…See More
Jun 14
 
 
 

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