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President Signs MD-CARE Act Amendments Into Law

Posted by PPMD on September 26, 2014 at 4:30pm 0 Comments

Capping a two-year advocacy campaign led by Parent Project Muscular Dystrophy (PPMD), today President Barack Obama signed the MD-CARE Act…

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Stem Cell Trial

Started by Moein in Research. Last reply by Prakash 17 hours ago. 10 Replies

PTC expands global presence

Started by wainaina muiruri in Research Sep 24. 0 Replies

NURSING CARE

Started by Sharon Wood in General Discussion. Last reply by Sharon Wood Sep 21. 2 Replies

Latest Activity

Profile IconGeorgina Olsen, Kara Schmidt, Mary Severinghaus and 2 more joined PPMD Community
2 hours ago

Staff
PPMD's 2 events were featured
2 hours ago
Profile IconParent Project Muscular Dystrophy via Facebook
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Santhera will present results from its Phase III study with Catena®/ Raxone® (Idebenone) in Duchenne during a webinar hosted by PPMD on Wednesday, October 15th at 12pm eastern. Santhera has also provided us with answers to some patient questions that can be accessed via the page below. If you have additional questions you would like addressed during the webinar, please comment here or submit them to info@ParentProjectMD.org with the subject line: 'Santhera Webinar' by…

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Facebook3 hours ago · Reply

Staff
PPMD posted an event
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Webinar: Efficacy of Catena®/Raxone® (Idebenone) on Respiratory Outcome in Duchenne at Eastern Time Zone

October 15, 2014 from 12pm to 1pm
Efficacy of Catena®/Raxone® (Idebenone) on Respiratory Outcome in Duchenne: Results of the phase 3 double-blind, randomized, placebo-controlled DELOS trialSanthera Pharmaceuticals will present data of the Phase III DELOS trial during a webinar hosted by Parent Project Muscular Dystrophy on Wednesday, October 15th at 12pm eastern. Presenters:Prof. Gunnar Buyse (University Hospitals Leuven, Belgium); PI of the studyThomas Meier PhD, CEO of…See More
4 hours ago
Prakash replied to Moein's discussion Stem Cell Trial
"Can you please post the Study ID?"
17 hours ago
Moein replied to Moein's discussion Stem Cell Trial
"Yes,these trials are on clinical trials.gov"
19 hours ago
Prakash replied to Moein's discussion Stem Cell Trial
"Hi Moein, is this trial in the US Clinical Trials website? If yes, please post. I would like read any relevant publications."
20 hours ago
Profile IconParent Project Muscular Dystrophy via Facebook
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Thank you to the thousands of families and coaches who participated in this year's Coach to Cure MD event! Send us your stories and photos so we can add them to our album and share with all those who helped us #TackleDuchenne on 9/27! Comment or email info@CoachToCureMD.org.

Coach To Cure MD 2014

Coach to Cure MD

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Facebookyesterday · Reply
Robin Taylor posted an event

Call Out DMD Spaghetti Feed and Bingo Night at Barret's Castle

October 26, 2014 from 3pm to 7pm
Spaghetti Dinner and free bingo -  raffle, lots of prizes, bake sale.$12.00 adults$6.00 children under 12Hosted by Louie Facca's Omaha familySee More
yesterday
Profile IconDani Micek, Shari & John Grant, Dawn Dettmer and 6 more joined PPMD Community
yesterday
Moein replied to Moein's discussion Stem Cell Trial
"Kenny,I am talking about the trials which are now recruiting and they did not fail yet"
yesterday
Kenny Chuck replied to Moein's discussion Stem Cell Trial
"Currently, I am in China. In 2004, China implemented a dmd stem cell therapy clinical trials, but failed. The reason for failure is  the gene inside the muscle can not be changed. I think India is the same。I think, the most effective…"
yesterday

Staff
PPMD updated an event
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Webinar: Prosensa Update about Drisapersen & Other Programs at Eastern Time Zone

October 2, 2014 from 12pm to 1:30pm
On Thursday October 2 2014 at 12 pm EDT UPPMD will organize a webinar with Prosensa.  During this webinar, Prosensa will answer questions from the Duchenne Community and give an update. Questions for Prosensa to be addressed during the webinar should be sent to …See More
Monday
Sharon Wood replied to Christine Piacentino's discussion Location of all the Families in the group New York Families
"Hi Lynn, Are you still in Fort Drum?  My nephew is in Watertown, NY and I would love to know other families of Duchennes patients in that area. Aunt Sharon "
Monday
Sharon Wood joined Christine Piacentino's group
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New York Families

Discussion group for families in New York on fundraising events, care, advocacy.See More
Monday
Moein replied to Moein's discussion Stem Cell Trial
"Hi Rahul,some improvement!do you mean that it is not huge difference in strength?I will be glad if you keep me informed about your son.thanks"
Monday
 
 
 

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