"Hi Eddy, did you get any more information on this? We too are thinking of doing this. Creatine seems to be a myostatin inhibitor. Our son was in a clinical trial for myostatin inhibitor "Anti-Myostatin Adnectin…"
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Non-Contiguous Mutations
I know this may be a long shot but does anyone have a non-contiguous duplication mutation? Our son has a duplication at 8-18 then again at 63-79+...
StaffNicole Herring replied to Jennifer's discussion 3yr old looking for suggestions
"Hi Jennifer! If you'd like to email our Care team they can offer some suggestions for you. Rachel Schrader heads up our Care team and can be reached at rachel@parentprojectmd.org. "
3yr old looking for suggestions
My son is 3 we live in an area with little to no services, he seems sore sometimes and his doctor thought maybe you guys would have ideas?
Discussions
My son has Duchenne, be appropriate to give Creatine? Thank you for your answer
Started by Eddy Rivera in Supplements. Last reply by M Dak Mar 28. 1 Reply 0 Favorites
Non-Contiguous Mutations
Started by Ashlie Robinson in Research Feb 19. 0 Replies 0 Favorites
3yr old looking for suggestions
Started by Jennifer in Research. Last reply by Nicole Herring Jan 20. 1 Reply 0 Favorites
Duchenne Boy Looking for PlayStation Buddies to Play Games With
Started by Jeffrey Kopp in General Discussion. Last reply by Jeffrey Kopp Jun 26, 2020. 2 Replies 0 Favorites
Success Stories for exon 52 drug
Started by william flannery in Research Mar 12, 2020. 0 Replies 0 Favorites
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PPMD Designates UC Davis a Certified Duchenne Care Center
Posted by PPMD on April 6, 2017 at 12:30pm 0 Comments 0 Favorites
Today Parent Project Muscular Dystrophy (PPMD) named UC Davis Department of Physical Medicine and Rehabilitation Neuromuscular Disease Clinic (UC Davis) our 15th …
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