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Latest Activity

Michele Schunemann joined Holly Cahoon's group
Krysti Barszcz is now a member of PPMD Community
Feb 19
Gidget Casiday is now a member of PPMD Community
Feb 12
Jeffrey Matucha posted a discussion

Pinball World Record Fundraiser in San Francisco, April 18th and 19th!

Hi everybody! I'm Jeffrey and I'm going to do something Crazy on April 18th at the Free Gold Watch pinball arcade in San Francisco!I am going to attempt to break the current world record for the longest time playing pinball, and I am using this event as a fundraiser for PPMD!All of the details about this bonkers event are here in my blog post:33 Hours of Pinball. Yes, really!My…See More
Feb 10
Jeffrey Matucha is now a member of PPMD Community
Feb 7
Karen Gabel replied to Lori's discussion Manifesting carriers
"Lori are you on Facebook? I recently joined a FB Group called DMD Manifesting Carriers that is very active. I've learned a lot and they are very supportive."
Jan 29
Lori posted a discussion

Manifesting carriers

My son and I have deletion of 10-16. I am symptomatic. Not sure what to do. I have always been very active. After my son was born I started to experience exercise intolerance in 2003. I work as a nurse and am terrified of not being able to work. Anyone with similar situation? I live in Kalispell Montana.
Jan 27
Ronald Gordon is now a member of PPMD Community
Jan 27
Alton Delane posted photos
Jan 22
Shiva joined Roxanne's group

Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Jan 15
Shiva joined Bains's group


For folks to share information about any research happening in India for Duchenne.
Jan 15
Никита Погребной is now a member of PPMD Community
Jan 6
Amit chopra is now a member of PPMD Community
Jan 2
angie jellinek joined Tina's group
Dec 19, 2019
angie jellinek joined PPMD's group
Dec 19, 2019
Profile IconJacob Ceparano and Shiva joined PPMD Community
Dec 4, 2019


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