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Latest Activity

ven replied to Galia Ben Ishay's discussion Tamoxifen
"Thanks Galia Ben!! this is very helpful information. "
14 hours ago
Jason Darienzo posted a discussion
yesterday
Marilyn Ash is attending PPMD's event
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PPMD's Every Single [One] Tour: Iowa City, IA at Iowa City, IA

April 1, 2017 all day
Save the Date! Registration for this FREE day-long meeting for families will open a month prior to the event.Sign up to receive email updates from PPMD to be notified when registration opens. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the…See More
Saturday
Karen commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Wow.  This is really early.  If I'm able to attend, I will be late.  Do you have a schedule yet?"
Saturday
Profile IconKaren and Christine Harenberg might attend PPMD's event
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PPMD's Every Single [One] Tour: Seattle, WA at Seattle, WA

March 26, 2017 all day
Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to…See More
Saturday
Brid Murray favorited Kathi Kinnett's blog post Duchenne Carrier Study at Nationwide Children’s Hospital
Friday
Michael Bazant posted a group
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Exon skipping 59

This group is organized for those who could benefit from exon 59 skipping.All relevant information are welcome.See More
Friday
Hao Su is now a member of PPMD Community
Friday
Profile IconParent Project Muscular Dystrophy via Facebook
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RESEARCH UPDATE: Take a closer look at some of the incredible progress Duchenne research has made only two months into 2017. PPMD's SVP of Research Strategy, Abby Bronson, provides a snapshot of the Duchenne pipeline, including updates on therapies in development and PPMD's latest funding news.

Duchenne Research Update: February…

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FacebookFriday · Reply

Staff
Abby Bronson posted a blog post

Duchenne Research Update: February 2017

 An Overview of Your Impact in Action PPMD Grant Awards in the last Quarter of 2016 and first part of 2017. PPMD Launches Long-Term Gene Transfer Initiative PPMD has a long history of funding early-stage, innovative preclinical and clinical research for potential therapies. We have kept our eye on gene therapy in Duchenne for a long time, following the earlier challenges with immune reactions and…See More
Friday

Staff
PPMD commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Hi Christine -- We will be posting registration information by end of day! Check back soon :) "
Friday
Christine Harenberg commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Does anyone know when registration for the Every Single One Tour in Seattle will be posted?  I'm trying to find more information about the day and how to register."
Friday
Profile IconEsperanza Lujan, ven, Anthony and 1 more joined PPMD Community
Thursday
Profile IconParent Project Muscular Dystrophy via Facebook
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Families from across California gathered together at Children's Hospital Los Angeles (CHLA) – one of PPMD's Certified Duchenne Care Centers – last month to hear the latest updates in Duchenne research, advocacy, and care. Thank you to all of our presenters, the extraordinary clinical providers at CHLA, and our amazing families who joined us for an information-packed day. A full wrap-up (including links to presentations!) is now available on our blog. Next stops...…

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FacebookWednesday · Reply

Staff
PPMD posted an event
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UFL Student Physical Therapy Association Golf Outing at Mark Bostick Golf Course

June 24, 2017 all day
The UF Student Physical Therapy Association Presents a Charity Golf Tournament for Parent Project Muscular Dystrophy. When: Saturday, June 24th, 2017 Entry Fee: $80 per person7:45-8:15 AM Registration & hit range balls / putt Shotgun start at 8:30 AM Breakfast & Lunch will be provided Awards Ceremony and Presentation after Play 4 Man Scramble Format includes: Range Balls, Green Fees and Cart Breakfast and Lunch Door PrizesAwards for 1st & 2nd placeAdditional Events: Silent Auction…See More
Wednesday
Sai Chand. Gurujala replied to Nimi Langer's discussion How much to give? in the group Idebenone
"Hi David, How is you son doing now. Hope he is doing well. Please share."
Wednesday
 
 
 

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