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Jason Darienzo posted a discussion

Rapamycin prevents age-related loss of stem cells

https://www.sciencedaily.com/releases/2017/12/171207141721.htmAdult stem cells replenish dying cells and regenerate damaged tissues throughout our lifetime. We lose many of those stem cells, along with their regenerative capacity, as we age. Working in flies and mice, researchers discovered that TOR, a nutrient sensing pathway which is central to the aging process, drives the loss of…See More
Friday
Profile Iconjulia, Alison Barnard and jacsque lamont porter joined PPMD Community
Thursday

Staff
PPMD posted blog posts
Thursday

Staff
Pat Furlong posted a blog post

Expanding PPMD’s Gene Therapy Initiative

This holiday season, PPMD is asking you to support our ongoing Gene Therapy Initiative. Gene therapy has dominated the headlines this year in a number of diseases, including Duchenne.…See More
Thursday

Staff
PPMD posted an event
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PPMD's End Duchenne Tour: Morristown, NJ at Morristown, NJ

February 3, 2018 all day
Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the End Duchenne Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the End Duchenne Tour brings updates on research, advocacy, and care to…See More
Wednesday

Staff
PPMD posted a blog post

PPMD Designates UCSF Benioff Children's Hospital San Francisco a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named UCSF Benioff Children’s Hospital San Francisco (UCSF) our 18th Certified Duchenne Care Center. PPMD’s Certified Duchenne Care Center Program, which…See More
Wednesday
Profile IconJawad Noor and Hugo Galarza joined PPMD Community
Wednesday

Staff
Annie Kennedy posted a blog post

Take Action - We Can Still Impact the Tax Reform Bill

The Senate passed their tax reform bill. In the dead of night. Overnight -- shortly before 2 AM on Saturday.Despite protests and outcries from almost every sector: non-profits, disability communities, healthcare providers, educators, universities, researchers, graduate students (future researchers, geneticists, nurses, PTs, physicians)...Now, both the House and…See More
Wednesday

Staff
Kathi Kinnett posted a blog post

Making Duchenne Care and Clinical Trials Better – Globally

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure him.A physical therapy student in Turkey who wants to learn all she can to help the…See More
Dec 5
Hamed AL-Jabili shared Pat Furlong's blog post on Facebook
Dec 4

Staff
Pat Furlong posted a blog post

Invest in gene therapy--all gifts matched!

So much has changed in the Duchenne research landscape since we were founded back in 1994, but your commitment has been a constant since our story began. You’ve never stopped fighting, and the promise for our community has never been greater, with recent breakthroughs in gene therapy, one of the most exciting approaches we’ve…See More
Dec 4
Profile Iconsabri saleh shabibi, Agnieszka Urbanska and Danelle Staples Dickerson joined PPMD Community
Dec 3

Staff
Abby Bronson posted a blog post

PPMD Research Update: Gene Therapy, Accelerating Clinical Trials & More

Throughout the history of Duchenne, there have been moments that we recognize as inflection points, times when we saw a significant shift in the fight to end Duchenne, when the landscape changed.The discovery of the gene. The MD-CARE Act. The creation of the Care Considerations. The FDA Draft Guidance for Duchenne. The first approval in Duchenne.And now, we are seeing systemic gene…See More
Nov 30

Staff
PPMD posted blog posts
Nov 30
Profile Iconcheryl wagner, Amita Jain, Mary Yep and 5 more joined PPMD Community
Nov 21

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Albuquerque, NM

On November 4, PPMD had the pleasure of working with the parents and providers of New Mexico to present our final Every Single One Tour stop of 2017 (click here for a preview of our 2018 Tour…See More
Nov 20
 
 
 

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