Welcome to the PPMD Community.

An Overview of Your Impact in Action We are less than a week away from PPMD’s Annual Connect Conference, where researchers and industry from around the world will provide our community with the latest updates on current and potential Duchenne therapies.As we gear up for what promise to be…See More

Navigating life with Duchenne can be daunting and time consuming for families. We rely on each other to share wisdom and information in order to make the process smoother and life a bit easier. The best guidance we can get is from those who have been through a given situation, sharing what they’ve learned to help others navigate resources that exist. PPMD strives to find better ways to assist families with their journey. With…See More

HOLA  MI  HIJO JOSE DAVID  NECESITA DE SU APOYO  SOMOS  UNA  FAMILIA DE ESCASOS  RECURSOS  ECONOMICOS  DE CARTAGENA  COLOMBIA  ,ERAN  DOS HERMANOS  CON  DUCHENNE  YA FALLECIO  UNO EL  1 DE DICIEMBRE DEL  2011 A  LOS  17  AÑOS  .POR LA  FALTA  DE  UNA  BUENA  ALIMENTACION  Y  LA  CASA  EN  MAL  ESTADO  LE  DIO  UNA  FUERTE  NEUMONIA  EL  CUAL  LE  PROBOCO  EL  PARO  RESPIRATORIO...POR  FAVOR  AYUDEN  A  MI  OTRO  HIJO   CON  DUCHENNE  JOSE DAVID  VIAÑE DIAZ  A  QUE  TENGA  UNA  MEJOR CALIDAD  DE…See More

With Congress not wrapping up spending bills for Fiscal Year 2017 until we were more than 7 months into the fiscal year, the FY 2018 budget and appropriations (funding) cycle will be interesting to say the least. The Trump Administration released a preliminary — or “skinny” budget -- in March but did not release a more…See More

This Father’s Day, I hope you will join me in celebrating the dads in this community. They are often the unsung heroes of our community. They are role models for our sons, providing for our families. Their hearts ache just as profoundly when our children are hurting. Their hearts love just as unconditionally.That’s why this Father’s Day, I am asking you to celebrate the men in your…See More

PPMD's Pat Furlong  Earlier this month, we had the privilege of having our fourth stop in 2017 on PPMD's Every Single One Tour in Gainesville, Florida. We were excited to be able to meet with many families and professionals to discuss issues around…See More