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Just One Month Away from the 9th Annual Coach to Cure MD!

Posted by PPMD on August 24, 2016 at 12:30am 0 Comments

Join us September 24th as thousands of coaches from hundreds of universities wear the Coach To Cure MD patch on their sleeve to raise awareness. Families will join teams on the field on game day and will share their stories with spectators and media. We also…

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Jay Griffin replied to Nita McGauran's discussion Prednisone and weight gain
"So far so good. None of the side effects seen. He gained 2.5 lbs in two weeks. I just think it's growth sleet. Been on it since July 1."
yesterday
Shelly favorited Jason Darienzo's discussion Heart of Bureaucratic Darkness
yesterday
Johnny posted a discussion

Is there a specific bed or mattess that is recommended to help with sleep

Does anyone recommend a specific bed or mattress to help my son sleep? We are having to turn him over at least six times per night, he is 17 with DMD and can't turn himself over. If anyone has any suggestions please help we need more sleep at night.See More
Friday
Jason Darienzo posted a discussion

Heart of Bureaucratic Darkness

Heart of Bureaucratic DarknessWhy won’t the FDA make a decision on a muscular dystrophy drug?The Wall Street JournalOpinionAug. 9, 2016 7:10 p.m. ETGovernment ineptitude is usually a punch line, but the dark reality is that bureaucratic malfeasance can carry a body count. The Food and Drug Administration is months late deciding whether to approve a drug for muscular dystrophy, and…See More
Thursday
Galia Ben Ishay favorited Abby Bronson's blog post Understanding Gene Therapy & CRISPR/Cas9: Upcoming Clinical DMD Symposium
Thursday

Staff
PPMD's blog post was featured

Just One Month Away from the 9th Annual Coach to Cure MD!

Join us September 24th as thousands of coaches from hundreds of universities wear the Coach To Cure MD patch on their sleeve to raise awareness. Families will join teams on the field on game day and will share their stories with spectators and media. We also have local high schools participating…See More
Wednesday
Samantha Stimpson is now a member of PPMD Community
Wednesday

Staff
PPMD posted a blog post

Just One Month Away from the 9th Annual Coach to Cure MD!

Join us September 24th as thousands of coaches from hundreds of universities wear the Coach To Cure MD patch on their sleeve to raise awareness. Families will join teams on the field on game day and will share their stories with spectators and media. We also have local high schools participating…See More
Wednesday

Staff
Ryan Fischer posted a blog post

PPMD’s #EverySingleOne Tour: Denver

This past weekend marked the third and fourth stops on PPMD’s Every Single [One] Tour – one taking place at Denver Children’s (University of Colorado) – one of…See More
Tuesday
Eddy Rivera replied to Eddy Rivera's discussion As I give my son Deflazacort?
"HiThank you for your prompt response and assistance, many blessings. regards"
Tuesday
Nadja replied to Nita McGauran's discussion Prednisone and weight gain
"That is good!!what do you think about it?how long is he on the Trail?"
Tuesday
Nadja replied to Eddy Rivera's discussion As I give my son Deflazacort?
"Hi 21,6 mg"
Tuesday
Eddy Rivera posted discussions
Tuesday
Eddy Rivera replied to Eddy Rivera's discussion Cuanto debo de dar a mi hijo de deflazacort
"Good night, my son now weighs 24 kilograms grateful if I can recommend what the appropriate amount of daily deflazacort I should give my son, please I need your help. Thank you,"
Tuesday
Jay Griffin replied to Nita McGauran's discussion Prednisone and weight gain
"My son is on the VBP-15 clinical trial"
Tuesday
Jay Griffin replied to Jennifer Powers's discussion Deflazacort
"Try VBP-15 clinical trial"
Tuesday
 
 
 

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