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The Breath of Life: New 3-Part Pulmonary Webinar Series

Posted by Kathi Kinnett on August 12, 2014 at 9:30am 0 Comments

The lungs require the strength of many muscles to help a person to breathe and cough. As people with Duchenne grow older, the respiratory muscles, like the skeletal muscles, become weaker.…

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Latest Activity

Profile IconDennis Le, Susan Boswell, Greg Waitley and 3 more joined PPMD Community
yesterday
Jaffer Raza posted a photo
yesterday
Crissy Zitzer favorited Roxanne's group Outliers - Intermediate between Duchenne & Becker MD
yesterday
Crissy Zitzer joined Roxanne's group
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Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
yesterday
Crissy Zitzer joined Paul Johnson's group
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Families in Pennsylvania

Group where families in the Pennsylvania or sorrounding area can colloborate
yesterday
Crissy Zitzer replied to Mike O's discussion Ice bucket challenge
"That would be great if we could come up with something to raise awareness for MD.  I don't really know anything about ALS or know anyone who has it, but everyone is talking about the ice bucket challenge and posting about it all over…"
yesterday

Staff
Nicole Herring posted a blog post

Run Big Sur or Star Wars to End Duchenne!

Two NEW and exciting races have been added to our Run For Our Sons calendar for 2015....which adventure will you choose?Choose your destiny at the inaugural…See More
yesterday
kimmy watters replied to Mike O's discussion Ice bucket challenge
" i am going to this challenge no matter what if. als can raise  15.6 million  dollars so can we. kimmy"
Tuesday
Mike O posted a discussion

Ice bucket challenge

I'm sure many of you noticed that ALS foundation recently got some wonderful publicity (and presumably more funds). It'd be awesome if DMD community could come up with an idea that would gain similar popularity. See More
Monday

Staff
Pat Furlong posted a blog post

PPMD Submits Cardiac Recommendations to FDA

As you know, PPMD recently facilitated a multi-stakeholder process involving patients, parents, investigators, industry, and other interested parties which culminated in a draft guidance document “Guidance for Industry: …See More
Monday
Trinh Nguyen replied to Trinh Nguyen's discussion Power chair
"Thanks a lot Tammy."
Monday
Prasad Surampudi joined Eileen DeLong's group
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NEW ENGLAND FAMILIES

A PLACE FOR FAMILIES FROM NE TO MEET
Sunday
Mohammad Anis Malah posted photos
Saturday
Joyce Carpenter commented on Pat Furlong's blog post Duchenne in Paradise
"I still remember the diagnosis of DMD in Feb. of 1995 when Ben was 9.  My sister was in the OT program at WMU at that time and I was compelled to share this with my brothers and sister.  We had planned on meeting for the lunch the week…"
Friday
Tammy Childres replied to Trinh Nguyen's discussion Power chair
"It all depends on your sons needs. Will he be using the chair for only short periods of time? You may only need a chair with power assist wheels and not a full power chair. The C300 will go outdoors as well"
Aug 15
Trinh Nguyen replied to Trinh Nguyen's discussion Power chair
"Much thanks for yr advice. It is used in and out-door, isn't it ? We are living in Vietnam, so I doubt if it can be used out-door here :-( We may use only at home and in class. In this case, shall we need less function, lighter chair ? Sorry to…"
Aug 14
 
 
 

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