Vaccinations are very, very important to protect us against infection and disease – but they are also very, very confusing.
Some vaccines are “live,” some are “attenuated (killed),” some protect against…Continue
Duchenne is incredibly complicated and on any given day we have a thousand different questions. We want to do our best to help get you answers, so we are currently planning a series of webinars that speak to the topics that concern you most. Look for upcoming webinars on: ► Dystrophin (with Professor Francesco Muntoni & PPMD CEO John Porter, PhD) ► Orthopedic Interventions ► IEPs ► Peer Issues (Including Bullying) ► How You Can Advocate with Us What are some other topics you would like…See More
When you rely on vital medical equipment, having a plan for emergency situations such as a power failure is extremely important. To all our friends in the Northeast bracing for Winter Storm Juno, here are some helpful guides regarding power failure safety plans: ► Life and Breath – Planning for Power Failure Guide: http://dmdpathfinders.org.uk/2014/07/22/life-and-breath/ (This factsheet contains a variety of information and strategies, from adults with Duchenne and similar types of…See More