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The Logan Letters

Started by Logan Shannon in Research Aug 15. 0 Replies

Deletion exons 5-16

Started by Can Hope in Research. Last reply by Shady Aug 9. 4 Replies

finding the appropriate hospital beds

Started by Suzanne Desmond in Research. Last reply by Darren Mulligan Aug 8. 1 Reply

Tamoxifen

Started by Galia Ben Ishay in Research. Last reply by Galia Ben Ishay Jul 23. 38 Replies

Latest Activity

Profile IconHannah Cain and Cindi Cerecedes Almada joined PPMD Community
18 hours ago
Gina Manning joined Holly Cahoon's group
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Dr. Kevin Flanigan - University Research Center, Utah

For all of you who see Dr. Flanigan as well.
Saturday
Profile IconAmy Martin, Teresa Wood, Andy Haycock and 2 more joined PPMD Community
Saturday

Staff
PPMD's event was featured

For Clinicians: PPMD Duchenne Clinician Care Conference at Sanibel, FL

January 24, 2018 to January 26, 2018
Save the date! This year, PPMD will be hosting our first Duchenne Clinician Conference, January 24-26, 2018 at the Marriott Harbor in Sanibel, FL. Registration is planned to open by October 1.This conference will provide up to date clinical education, resources, materials and networking, supporting your ability to provide the very best care to your patients and families living with Duchenne.Our robust agenda will cover comprehensive care and services for Duchenne at all stages of the diagnosis,…See More
Thursday

Staff
PPMD posted an event

PPMD Duchenne Clinician Care Conference at Sanibel, FL

January 24, 2018 to January 26, 2018
Save the date! This year, PPMD will be hosting our first Duchenne Clinician Conference, January 24-26, 2018 at the Marriott Harbor in Sanibel, FL. Registration is planned to open by October 1.This conference will provide up to date clinical education, resources, materials and networking, supporting your ability to provide the very best care to your patients and families living with Duchenne.Our robust agenda will cover comprehensive care and services for Duchenne at all stages of the diagnosis,…See More
Thursday

Staff
PPMD updated an event
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Holy Mackerel Brewery Event to End Duchenne at Holy Mackerel Brewery

September 24, 2017 from 1pm to 4pm
When: September 24, 2017Where: Holy Mackerel Brewery  3260 NW 23rd Avenue, Suite 400 Pompano Beach FL 33069Come watch the Miami Dolphins vs NY Jets game!Includes buffet lunch, first beer or glass of wine, and sweet surprises…See More
Wednesday
Logan Shannon posted a discussion

The Logan Letters

Check out the book that I just wrote about my life and my coping process with DMD. It details my faith in Christ and the unique community of my family and friends! Most of it is interestingly written from the point of view of others. Find it at theloganletters.com
Aug 15
Profile IconMonica, Gayathri and Logan Shannon joined PPMD Community
Aug 15

Staff
Kathi Kinnett posted a blog post

PPMD's Bone Health Workshop Published

May 12-13, 2016, PPMD convened a workshop of 48 opinion leaders, research experts and clinicians from the US and Canada, on the subject of Duchenne and bone biology. Bone health has long been a confusing and often neglected…See More
Aug 14

Staff
Annie Kennedy posted a blog post

PDUFA VI Passes the Senate – Now Moves to President’s Desk to be Signed Into Law

The PDUFA VI bill – known as FDA Reauthorization Act in the House (FDARA) – passed the House of Representatives early in July with strong bi-partisan support. It then moved to the Senate but consideration was delayed until after the Senate healthcare reform deliberations were completed. Today, though, we are excited that a companion bill (mirroring the House version) passed in the Senate! It will now move to the President’s desk where it is expected to be signed into Law.The Prescription Drug…See More
Aug 14

Staff
PPMD updated an event
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FACES NY - World Duchenne Awareness Night at Buffalo Yacht Club

September 7, 2017 from 6pm to 9pm
When: September 7, 2017  6-9 PMWhere: Buffalo Yacht Club  1 Porter Avenue Buffalo NY 14201Come join us in celebrating World Duchenne Awareness Day by watching the Peace Bridge turn RED at the Buffalo Yacht Club!Silent auction/raffle tickets will also be available for purchase at event.Please buy in advance-there will be limited dinner tickets at the door.…See More
Aug 13
Owen Rogers commented on PPMD's event [Upcoming Webinar] Gene Therapy for Duchenne
"Can you post the link to the recording please, thanks"
Aug 12
Owen Rogers is attending PPMD's event
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[Upcoming Webinar] Gene Therapy for Duchenne at Online Webinar - Eastern Time Zone

August 9, 2017 from 1pm to 2pm
Wednesday, August 9 at 1:00 PM ETWith trials in gene therapy on the horizon, and terms like "cassette", "construct", "promoter", and "transduce" being thrown around, we want to ensure that you, our Duchenne Community, has all the knowledge you need to navigate the world of gene therapy.PPMD's upcoming webinar on Wednesday, August 9 at 1:00 PM ET will focus on understanding the different therapies that are being developed that are commonly referred to as gene therapy, including micro-dystrophin…See More
Aug 12

Staff
PPMD posted events
Aug 10
Profile IconKushal Parikh, Warren Penner, Nikki Hemken and 4 more joined PPMD Community
Aug 10

Staff
PPMD's event was featured
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PPMD's Every Single [One] Tour: Charleston, WV at Charleston, WV

September 9, 2017 all day
Registration for this FREE day-long meeting for families is now open! Click here to register.------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care…See More
Aug 10
 
 
 

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