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Eliza Geddes Franson favorited Eliza Geddes Franson's profile

Jul 10

Tata Nech is now a member of PPMD Community

Jul 8

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Shawn replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now

"I'm sorry to hear this too. Keith and Jill, your reply was spot on. Everything you wrote was what we've experienced. Tao, the first couple years are the worst. But yes it does get better. Our 14 year old son loves life. He's had an…"

Jun 27

Cheryl Prior is now a member of PPMD Community

Jun 14

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Amanda is now a member of PPMD Community

Jun 10

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Erin Green

May 14

Serhii Tereshchuk and Toni joined PPMD Community

May 14

Serhii Tereshchuk favorited Erin Green's profile

May 8

Sampreet posted a discussion

Osteoporosis

My son, 18 years old, had a fall and fractured his femur 9 months back. He was walking well before this and now he is trying hard to walk independently again. He has fallen a couple of times after the fracture and scared he might fracture himself again. Can anyone suggest some kind of foam mats to absorb the force of the fall, in case he falls, as he is really losing strength day by day. Thanks in advance.See More

May 3

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Darren Mulligan is now a member of PPMD Community

Apr 25

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Sheila Vasconcelos da Costa e Si joined PPMD's group

2019 PPMD Annual Conference

Connect with other 2019 PPMD Annual Conference attendees.See More

Apr 22

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Katy Pease is now a member of PPMD Community

Apr 15

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Tao Wang replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now

"Thank you Keith and Jill, sorry to hear that your lovely son chase has already been on this difficult path for 10 years! Your words are very comforting. I can't really think about future since I got the news, but knowing that you have…"

Mar 22

Keith & Jill VE replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now

"Very sorry to hear this. I can still vividly remember the 'punch to the gut' when we heard the news about our son almost 10 years ago. However, you've found a great community in PPMD. PPMD recently published a 10-year…"

Mar 21

Janet Bloor and Francisco Torcellan joined PPMD Community

Mar 20

Tao Wang posted a discussion

Wait four months to join clinic trial or start with prednisone now

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your suggestions based on your experiences. Max is 4 and since he has not taken any medication he is eligible for two clinic trials in UC Davis where the medicine in test are supposed to have less side effects - called Vamorolone and Catabasis if anyone came across it. Both trials are for about 1 year. The…See More

Mar 18

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