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Latest Activity

james asc is now a member of PPMD Community
Kanchan Kamini is now a member of PPMD Community
Sep 7
Claudia Alba posted a blog post

CFAH's Review of the Benefits of CBD for Muscular Dystrophy

As a passionate advocate for safe, effective natural treatments, I often receive questions from readers about which CFAH sites are reliable sources for CBD information, education, and reviews. After my own research on CBD reviews and ratings, I have determined that there are only a handful of such sources online that provide objective, scientific information. But in spite of this limited pool of CFAH sources, I've discovered many useful resources to help make sense of this ever-changing and…See More
Aug 31
Profile IconClaudia Alba and Lilly Rogers joined PPMD Community
Aug 30
Profile Iconannesmith and Megan joined PPMD Community
Aug 20
Paras Patel is now a member of PPMD Community
Jul 23
Theresa Blake posted a discussion

Muscle twitches/body spasms

Anyone else with DMD experiencing whole body muscle twitching/spasms that are uncontrollable?  Our son has had them and very scary because we don't know what to do or how to handle it.  I know it is probably the muscles getting weaker but if anyone else has this please give some advice.  See More
Jul 20
M Dak joined MicahsDaddy's group

California Families

This group is for families living in CA.
Jul 18
Profile IconMadison Clarey, Stella Abud and Greg Berg joined PPMD Community
Jun 29
Adam J Herrmann is now a member of PPMD Community
May 22
Danielle Dwiggins joined Lisa Jones's group

Illinois/Missouri Families

This group is for families from Illinois and Missouri
May 21
Danielle Dwiggins is now a member of PPMD Community
May 21
Tania posted a discussion

Deflazacort versus Prednisone

Hi, my 5 year old son was recently diagnosed with Duchenne. We are due to start him on Deflazacort next week. We also have the option of giving him Prednisone instead. What would you recommend?
May 10
Tania is now a member of PPMD Community
May 7
Katie Chase is now a member of PPMD Community
Apr 14
M Dak replied to Eddy Rivera's discussion My son has Duchenne, be appropriate to give Creatine? Thank you for your answer
"Hi Eddy, did you get any more information on this?  We too are thinking of doing this.  Creatine seems to be a myostatin inhibitor.  Our son was in a clinical trial for myostatin inhibitor "Anti-Myostatin Adnectin…"
Mar 28


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