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Buddy Cassidy posted a blog post

PAAC Leadership Conference 2017

Heartening. That’s how I found last week’s PPMD PAAC Leadership and Advocacy Conference.  Every time the whole community gets together, I leave feeling EMPOWERED.  I like that word. Good word isn’t it? There is no limit to what I can do for my community. And I imagine I’m not the only one who feels like this.…See More
19 hours ago
Profile IconParent Project Muscular Dystrophy via Facebook
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ICYMI, Dr. Clemens and Lauren Morgenroth joined us for a webinar last week to provide an update on trial recruitment for NS Pharma's Exon 53 Skipping Program. Our speakers reviewed the study design and discussed the most recent updates for the trial that is ongoing in the US. You can watch the recording of the webinar below.

[Webinar] NS Pharma's Exon 53 Skipping Program: Trial Recruitment & Update - February…

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Facebookyesterday · Reply
Profile IconAlfonso Juarez, Seda Filenko, Becky Fishwick and 1 more joined PPMD Community
yesterday

Staff
PPMD commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Hi Karen! We have a draft agenda available on our registration page: parentprojectmd.org/esoseattle. Hope you see you there!"
yesterday
ven replied to Galia Ben Ishay's discussion Tamoxifen
"Thanks Galia Ben!! this is very helpful information. "
yesterday
Jason Darienzo posted a discussion
Saturday
Marilyn Ash is attending PPMD's event
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PPMD's Every Single [One] Tour: Iowa City, IA at Iowa City, IA

April 1, 2017 all day
Save the Date! Registration for this FREE day-long meeting for families will open a month prior to the event.Sign up to receive email updates from PPMD to be notified when registration opens. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the…See More
Saturday
Seda Filenko favorited Laura McLinn's profile
Saturday
Karen commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Wow.  This is really early.  If I'm able to attend, I will be late.  Do you have a schedule yet?"
Saturday
Profile IconKaren and Christine Harenberg might attend PPMD's event
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PPMD's Every Single [One] Tour: Seattle, WA at Seattle, WA

March 26, 2017 all day
Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to…See More
Saturday
Brid Murray favorited Kathi Kinnett's blog post Duchenne Carrier Study at Nationwide Children’s Hospital
Friday
Michael Bazant posted a group
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Exon skipping 59

This group is organized for those who could benefit from exon 59 skipping.All relevant information are welcome.See More
Friday
Hao Su is now a member of PPMD Community
Friday
Profile IconParent Project Muscular Dystrophy via Facebook
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RESEARCH UPDATE: Take a closer look at some of the incredible progress Duchenne research has made only two months into 2017. PPMD's SVP of Research Strategy, Abby Bronson, provides a snapshot of the Duchenne pipeline, including updates on therapies in development and PPMD's latest funding news.

Duchenne Research Update: February…

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FacebookFriday · Reply

Staff
Abby Bronson posted a blog post

Duchenne Research Update: February 2017

 An Overview of Your Impact in Action PPMD Grant Awards in the last Quarter of 2016 and first part of 2017. PPMD Launches Long-Term Gene Transfer Initiative PPMD has a long history of funding early-stage, innovative preclinical and clinical research for potential therapies. We have kept our eye on gene therapy in Duchenne for a long time, following the earlier challenges with immune reactions and…See More
Friday

Staff
PPMD commented on PPMD's event PPMD's Every Single [One] Tour: Seattle, WA
"Hi Christine -- We will be posting registration information by end of day! Check back soon :) "
Friday
 
 
 

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