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Praveen commented on Eileen DeLong's group Exon Deletion 3-7

"All - There is a facebook group for Exon 3-7 deletion. Please join this group. https://www.facebook.com/groups/120669448584316/"

Sep 13

Eileen DeLong replied to James's discussion exons 3 - 7

"Hi, Jared is now 19 and Calvin is 22 both still walking. Seeing Dr. Wong in November. So lucky she moved closer to us since we had to stop seeing her due to insurance change. They both have problem with anxiety but doing well mostly."

Sep 13

Philip Weiss and Marsha Schattner joined PPMD Community

Sep 11

Shannon Cooley joined Eileen DeLong's group

Exon Deletion 3-7

Connect with other families with exon deletion 3-7.

Sep 9

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Ron Anthony Jr is now a member of PPMD Community

Sep 4

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Erin Collins is now a member of PPMD Community

Aug 27

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SANJEEV KUMAR and Dennis Dunn joined PPMD Community

Aug 22

Dori is now a member of PPMD Community

Aug 20

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Galia Ben Ishay shared Jason Darienzo's discussion on Facebook

Muscular dystrophy patients could someday also benefit from this hydrogel successfully tested in mice

Aug 19

Galia Ben Ishay shared Jason Darienzo's discussion on Facebook

New CRISPR-EXON SKIP technique could treat DMD

Aug 19

Jason Darienzo posted discussions

Aug 17

Nikki is now a member of PPMD Community

Aug 14

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Kevin replied to James's discussion exons 3 - 7

"Hi All, My son was diagnosed with exons 3-7 deletion last year at age 8. He has muscle weakness and ADHD, but otherwise doing pretty well. This thread has been very helpful for me understanding this specific deletion. Just wondering if…"

Aug 12

Ron is now a member of PPMD Community

Aug 1

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Jason Darienzo posted a discussion