For those who have lost a child.

Our 10-year-old son, Liam, would like to find some new buddies to play some games on his Playstation4. He likes NHL 20, Apex Legends, Star Wars Battlefront 2, MLB The Show, Madden NFL 20, Fortnite, Destiny 2, and Minecraft. He's had some run-ins with some older boys (friends of friends) who are sometimes mean, so I thought if he found some other Duchenne boys and siblings he'd have better luck. His PS4 username is TyphoonLiam.Thanks! Jeff Kopp St. Louis, MO…See More

Has there been any studies on how the exon 52 approved drug is doing?I believe it has been on the market for 3 years .See More

Hi everybody! I'm Jeffrey and I'm going to do something Crazy on April 18th at the Free Gold Watch pinball arcade in San Francisco!I am going to attempt to break the current world record for the longest time playing pinball, and I am using this event as a fundraiser for PPMD!All of the details about this bonkers event are here in my blog post:33 Hours of Pinball. Yes, really!My…See More

My son and I have deletion of 10-16. I am symptomatic. Not sure what to do. I have always been very active. After my son was born I started to experience exercise intolerance in 2003. I work as a nurse and am terrified of not being able to work. Anyone with similar situation? I live in Kalispell Montana.

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More