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Praveen commented on Eileen DeLong's group Exon Deletion 3-7
"All - There is a facebook group for Exon 3-7 deletion. Please join this group. https://www.facebook.com/groups/120669448584316/"
Sep 13
Eileen DeLong replied to James's discussion exons 3 - 7
"Hi, Jared is now 19 and Calvin is 22 both still walking. Seeing Dr. Wong in November. So lucky she moved closer to us since we had to stop seeing her due to insurance change. They both have problem with anxiety but doing well mostly."
Sep 13
Profile IconPhilip Weiss and Marsha Schattner joined PPMD Community
Sep 11
Shannon Cooley joined Eileen DeLong's group
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Exon Deletion 3-7

Connect with other families with exon deletion 3-7.
Sep 9
Ron Anthony Jr is now a member of PPMD Community
Sep 4
Erin Collins is now a member of PPMD Community
Aug 27
Profile IconSANJEEV KUMAR and Dennis Dunn joined PPMD Community
Aug 22
Dori is now a member of PPMD Community
Aug 20
Galia Ben Ishay shared Jason Darienzo's discussion on Facebook
Aug 19
Galia Ben Ishay shared Jason Darienzo's discussion on Facebook
Aug 19
Jason Darienzo posted discussions
Aug 17
Nikki is now a member of PPMD Community
Aug 14
Kevin replied to James's discussion exons 3 - 7
"Hi All, My son was diagnosed with exons 3-7 deletion last year at age 8.  He has muscle weakness and ADHD, but otherwise doing pretty well. This thread has been very helpful for me understanding this specific deletion.  Just wondering if…"
Aug 12
Ron is now a member of PPMD Community
Aug 1
Jason Darienzo posted a discussion
Jul 31
Lori is now a member of PPMD Community
Jul 30

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