Our most popular race weekend of the year - the Walt Disney World Marathon Weekend - is selling out fast! If you plan to join the Run For Our Sons team in January in Orlando, sign up soon before it's too late. We can't wait to for you to be part of the magic!
Live chat today on DuchenneConnect from 2-5 pm ET! This is a chance for you to chat with a certified genetic counselor. Log into your DuchenneConnect account this afternoon in order to access the live chat feature: www.DuchenneConnect.org
The leading registry for people with Duchenne Muscular Dystrophy provides an important resource to individuals with DMD and Becker and their families.…See More
This year PPMD will host the inaugural End Duchenne .1K at our 2016 Connect Conference in Orlando, FL! Join us for this fun and zany race as parents, families, kids of all ages, scientists and researchers, industry sponsors, and ANYONE and EVERYONE take to the streets of Orlando and together tackle .1K (about the length of a football field!). Your registration includes a race shirt, bib, swag bag and all the fun of racing. You won’t want to miss this fun and exciting event. A great way…See More
It's been a rough few weeks for this community, but our efforts to shape and reshape access barrier issues continue. Last Wednesday at the Muscular Dystrophy Coordinating Committee (MDCC) meeting, we took a giant leap forward. It was a pivotal day that PPMD was proud to be a part of!See More