Hello,My son just turned 14 yrs old and was diagnosed with DMD at age 3. At the time of his diagnosis both his doctor and us agreed not to give him steroid because of his another diagnosis which is Autism. After all this years his current doctor suggested to put him on steroid even at this age. He said it may or may not help but may be good thing to consider. my son uses power chair since age 9. Anybody out there started steroid late and would like to share your experience please?Thank you,RahelSee More

Hi,My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.Thanks,AmritSee More

Use this thread to share wheelchair accessible transportation options in Scottsdale.  PPMD's Connect Arizona Coordinator Jill Castle has shared the following list of helpful resources (click here to download a PDF…See More

My son will miss the only trial that I can find that just may give him more time because his fvc score is below their magic number. While the tragic irony of this fills me with rage, I'm again left with an impossible task : improve his FVC from 29% to 35% in six months.Has anyone tried this? Recommendations for equipment or technique? Any and all ideas will be appreciated.See More

What medication do you use. Exondys 51?