"Hi,
Here is an excurpt from this article which explained a lot to me:
Mechanisms of muscle weakness in muscular dystrophy
http://jgp.rupress.org/content/136/1/29.full
Muscle from DMD patients is known to express increased levels of TGF-β,…"
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PPMD endorses Senate version of Prescription Drug User Fee Act (PDUFA) after patient voice strengthened
Posted by PPMD on May 24, 2012 at 3:00pm 1 Comment 0 Favorites
As the U.S. Senate continues debate on legislation that seeks to accelerate delivery of safe and effective therapies to patients and to increase the patient voice as part of the therapy review process, PPMD is pleased to offer our enthusiastic endorsement of the legislation.
Over the past several months, PPMD has fought to include several key provisions included in the Senate version of the Food and Drug Administration Safety and Innovation Act, commonly referred to as the…
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David replied to Amrit's discussion Halo"And here is more, which I certainly don't fully understand, but I do think I learned something about how the body responds to the treatment. This statement seems to say that the effects on fibrosis are the side-effect of a side-effect…"
David replied to Amrit's discussion Halo"Boy, even the articles referenced on the Halo web site seem to say very little about how it works. Maybe the mechanism is just beyond laypeople? I dunno.
One abstract did have something interesting, but I sure can't translate it. Maybe somebody…"
Rhonda Moore posted a status"Thank you Thomas. It's never a dull moment in my house. They really keep me going."
JUAN PEDRO ARBULU replied to Theresa Hennigan's discussion Answering my sons questions"Hi Naomi, thank you for your answer, please send me the links you are talking about.
Take care too.
JP."
Tulika replied to Amrit's discussion Halo"David,
I am seeking out for the details on "HT-100 works by inhibiting the pathological fibrotic process in muscle and directly stimulating healthy muscle fiber regeneration"
No clue how is this achieved. Looks like for this time…"
David replied to Amrit's discussion Halo"It seems they have raised enough to start phase 2, per this article.
http://www.xconomy.com/boston/2012/05/24/halo-gathers-1-1m-from-patient-groups-for-muscular-dystrophy-drug/2/
For now, Halo has plenty of resources to take HT-100 into the next…"
StaffPPMD's blog post was featured
PPMD endorses Senate version of Prescription Drug User Fee Act (PDUFA) after patient voice strengthened
As the U.S. Senate continues debate on legislation that seeks to accelerate delivery of safe and effective therapies to patients and to increase the patient voice as part of the therapy review process, PPMD is pleased to offer our enthusiastic endorsement of the legislation. Over the past several months, PPMD has fought to include several key provisions included in the Senate version of the Food and Drug Administration Safety and Innovation Act, commonly referred to as the Prescription Drug…See More
lisa burke replied to Veronica E.'s discussion Getting insurance to cover PGD"Hi Veronica,
Yes, there's certainly a wide variation in whether clincis recommend one or two embryos. I think a lot offer two (or sometimes more) because it increases the chances of a pregnancy and therefore benefits their success rates, which…"
"has anyone some info about this:
india Chaitanya Stem Cell Center
they claim have treated dmd patients.
http://www.chaitanyastemcell.com"
StaffBrian Denger replied to Pamela Myers's discussion School Years????
"Hi Pamela. I have two sons who have DMD. Matthew graduated from high school last year and just finished his first year of college. Patrick is about to finish his junior year in high school. Both are doing well academically…"
"Hi Pamela, I happy to hear the trasnsition to middle school is going well for Jacob. We always had difficulty with transitions no matter what the source. I can only share with you my experience and hope that gives you some insight as you…"
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