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Latest Activity
Swati joined Roxanne's group
Outliers - Intermediate between Duchenne & Becker MD
The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
ahmed Sayed Abdel Gawad posted a discussionentering the toilet
greetingsmy son now suffers when he wants to go to the toilet when he is in school. is there any ideas about facilitating this issue for him please. forexample does the electric standing wheel chair would help in such situations.thanks and best regardsSee More
Ashley Schea replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair"We went with the EZ Lite Cruiser for our 8 year old. We had to modify it because he is a little small for it but would be perfect for a 12 year old. It's about 60 pounds and can be folded up and put in…"
Satish Yadav commented on Bains's group India"Hello,
I consulted with Dr. regarding stemcell. She said its not for this disease. There are so many fake or we can say cheaters in market. Please be aware of it."
Keith & Jill VE replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair"We don't own one yet, but I have read good things about the EZ Cruiser Lite and the Airhawk. I will be following this thread to see other comments."
ahmed Sayed Abdel Gawad posted a discussionfoldable elecrtic wheel chair
can anyone tell me which type of electric wheelchair is a good one for my 12 years old child. i need a light one which can be folded easily to be carried in the carthanks in advanceSee More
Nithin Dev Bandakka commented on Eileen DeLong's group Exon Deletion 3-7"Hi Praveen,
my son has been recently diagnosed with exon 5-7 deletion. Exon 3-7 is the closest group to this. Can you approve my request to join the FB group? "
Discussions
entering the toilet
Started by ahmed Sayed Abdel Gawad in Research Dec 10, 2018. 0 Replies 0 Favorites
foldable elecrtic wheel chair
Started by ahmed Sayed Abdel Gawad in Accessibility and Disability Issues. Last reply by Ashley Schea Nov 28, 2018. 2 Replies 0 Favorites
Exon 44 n 45 deletion
Started by Shelly in Research Nov 20, 2018. 0 Replies 0 Favorites
Birthdays and Duchenne
Started by Sarah Kasner in General Discussion Oct 29, 2018. 0 Replies 1 Favorite
Emplaza in US
Started by Ankur Handa in Steroids. Last reply by Ankur Handa Oct 6, 2018. 2 Replies 0 Favorites
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Featured Blog
PPMD Designates UC Davis a Certified Duchenne Care Center
Posted by PPMD on April 6, 2017 at 12:30pm 0 Comments 0 Favorites
Today Parent Project Muscular Dystrophy (PPMD) named UC Davis Department of Physical Medicine and Rehabilitation Neuromuscular Disease Clinic (UC…
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