I always felt a strong connection to the Duchenne community while working at the NIH. As you know, that connection and the incredible work of organizations like PPMD inspired me to jump full-time into the fight to end Duchenne.
Yesterday’s FDA and NIH dystrophin methodology workshop really…Continue
For the remainder of March and the month of April, DuchenneConnect is focusing on questions brought to us by researchers working in the Duchenne and Becker field. The first new module for the spring is the GI/GU Module, which focuses on gastrointestinal and urinary function, including eating, swallowing, bowel movements, and urination. It should only take about 10 minutes to complete. The other new module for the spring is the Researcher Questions Module, which is a small set of questions…See More
Webinar: Orthopedic Complications in Duchenne (Contractures, Scoliosis, & Fractures)
Tuesday, March 31st, 1:00-2:00 EDT "What is heel cord lengthening?" "What are AFO's?" "How do I know if I am correctly doing stretches with my child?" "What should I know about scoliosis surgery?" "My child…See More
The archived webcast of Friday’s FDA-NIH dystrophin methodology meeting is now available online: http://www.fda.gov/drugs/newsevents/ucm432429.htm
I always felt a strong connection to the Duchenne community while working at the NIH. As you know, that connection and…See More