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IV port for exon 51

Started by Kirubha Balakumar in General Discussion May 3. 0 Replies

deflazacort dosage

Started by Michele Di Iorio in Research. Last reply by JoonGoo Lee May 2. 1 Reply

Tamoxifen

Started by Galia Ben Ishay in Research. Last reply by Galia Ben Ishay Apr 28. 30 Replies

Latest Activity


Staff
Nicole Herring posted a blog post

Before Summer Kicks Off, Get Your Event Kicked Off!

The Race to End Duchenne .1K is the perfect school event to celebrate Duchenne Action Month! About the length of a football field, a .1K is the race anyone can do! It requires no training and is an easy race to plan. Plus, the whole thing is over in less than…See More
9 hours ago
Profile IconGenevieve Laforet, Janet Warden and Lynn McMahon joined PPMD Community
Monday
David commented on PPMD's blog post Capricor Therapeutics Announces Positive Six-Month Results from the Randomized Phase I/II HOPE Clinical Trial in Duchenne Muscular Dystrophy
"When an all-star, hands down hall of famer joins your favorite team, it's a great…"
Monday
Keith & Jill VE commented on Pat Furlong's blog post Deciphering What We Know About EMFLAZA
"Forgive me, but this sounds like we've given up the fight against the astonomical pricing and we just need to accept it.  Since the pricing hasn't really changed from Marathon's initial announcement ($70k/year vs. $1k/year), what…"
Monday
vijender bajaj posted a discussion

WHAT WILL HAPPEND IF DUCHENN BOYS GENDER CHANGE

Dear All if we change  sex of   duchenne boys into a girl . Does girl will have same disease or she will died at 20-30 age what will happend on later age . what possiblities. any one has done . See More
Monday

Staff
Annie Kennedy posted blog posts
May 18
Steve Heller is attending PPMD's event
Thumbnail

[Upcoming Webinar] Nationwide Children’s Hospital Carrier Study at Online Webinar - Eastern Time Zone

May 17, 2017 from 1pm to 2pm
Wednesday, May 17 at 1:00 PM EDTPlease join Parent Project Muscular Dystrophy as we host a webinar Wednesday, May 17 at 1:00 PM EDT for a discussion on the Nationwide Children’s Hospital Carrier Study. Dr. Kan Hor and Dr. May Ling Mah will discuss cardiac disease in females who are carriers of the Duchenne genetic mutation – what we know, what we do not know, and what we hope to learn.Host:Kathi Kinnett, SVP Clinical Care, Parent Project Muscular DystrophySpeakers:Kan Hor, MD, Nationwide…See More
May 16

Staff
Annie Kennedy posted blog posts
May 16
Celal Tüntaş shared Galia Ben Ishay's discussion on Facebook
May 16
Profile IconG Grossman and Maria Potter joined PPMD Community
May 16

Staff
Abby Bronson posted a blog post

2017 DRSC Annual Meeting

On May 9, the Duchenne Regulatory Science Consortium (DRSC) held its Annual Meeting in Crystal City, VA. In the audience of about 40 people, there were industry and academic Consortium members, potential industry members, five FDA representatives, two NIH representatives, C-PATH representatives, and Buddy Cassidy, the DRSC patient…See More
May 16
CHRISTINA RODRIGUEZ favorited CHRISTINA RODRIGUEZ's profile
May 15

Staff
Pat Furlong posted a blog post

Deciphering What We Know About EMFLAZA

The unknowns. Some of the hardest beasts to conquer in life. The unpredictable variables that make life impossible to plan. The not being able to commit to vacations and holiday plans because – well, you just don’t know what curve balls life will toss at you between now and then. The not knowing whether you’ve selected the…See More
May 15
Janelle Hajjar is attending PPMD's event
Thumbnail

[Upcoming Webinar] Nationwide Children’s Hospital Carrier Study at Online Webinar - Eastern Time Zone

May 17, 2017 from 1pm to 2pm
Wednesday, May 17 at 1:00 PM EDTPlease join Parent Project Muscular Dystrophy as we host a webinar Wednesday, May 17 at 1:00 PM EDT for a discussion on the Nationwide Children’s Hospital Carrier Study. Dr. Kan Hor and Dr. May Ling Mah will discuss cardiac disease in females who are carriers of the Duchenne genetic mutation – what we know, what we do not know, and what we hope to learn.Host:Kathi Kinnett, SVP Clinical Care, Parent Project Muscular DystrophySpeakers:Kan Hor, MD, Nationwide…See More
May 11

Staff
PPMD posted an event
Thumbnail

[Upcoming Webinar] Nationwide Children’s Hospital Carrier Study at Online Webinar - Eastern Time Zone

May 17, 2017 from 1pm to 2pm
Wednesday, May 17 at 1:00 PM EDTPlease join Parent Project Muscular Dystrophy as we host a webinar Wednesday, May 17 at 1:00 PM EDT for a discussion on the Nationwide Children’s Hospital Carrier Study. Dr. Kan Hor and Dr. May Ling Mah will discuss cardiac disease in females who are carriers of the Duchenne genetic mutation – what we know, what we do not know, and what we hope to learn.Host:Kathi Kinnett, SVP Clinical Care, Parent Project Muscular DystrophySpeakers:Kan Hor, MD, Nationwide…See More
May 11
Profile IconJulie Van Houten and Veronica Rosario joined PPMD Community
May 10
 
 
 

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