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Latest Activity

Tom Yao is now a member of PPMD Community
18 hours ago
Josh Argall joined PPMD's group
Nov 13
Averill Finn posted a discussion

Experience of living with DMD

Hi,My name is Averill and I am training to become an Occupational Therapist. I wa wondering if I could ask you guys about your experience with health professionals especially OT?Have you had a positive experience with your OT's have they provided you with tools for an enhancement to your daily living?Have you had a negative experience?Is there anything you look back on and wish your OT had done differently?Many ThanksAverillSee More
Nov 8
Averill Finn is now a member of PPMD Community
Nov 6
Misty Montez is now a member of PPMD Community
Nov 5
Mir Asim Ali Khan is now a member of PPMD Community
Oct 21
Ren added a discussion to the group Becker Parents
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Dearth of Becker clinical trials

Here is the message I tried recently to post at the Advisory Committee Group:I couldn't find a way to comment on the news on the website, which would be a useful feature for users as well as the staff who write the news.This message is about the September 18 recap regarding the Duchenne platform trial community meeting.I am in favor of all the options put forward, but I am more than surprised that you didn't address the Becker patients as well.Becker is really part of the Duchenne community,…See More
Oct 16
Ren joined PPMD's group
Oct 16
Kana Muraki is now a member of PPMD Community
Oct 3
Jacob Hill posted a discussion

FDA: Approve Vyondys 53 (Golodirsen) for the treatment of Duchenne Muscular Dystrophy

Hello everyone! If you have a moment, please consider signing my petition to approve Vyondys 53 (Golodirsen) for the treatment of Duchenne Muscular Dystrophy.https://www.change.org/p/food-and-drug-administration-approve-vyondys-53-golodirsen-for-the-treatment-of-duchenne-muscular-dystrophy-2See More
Sep 20
Gary Pears is now a member of PPMD Community
Sep 17
Jacob Hill is now a member of PPMD Community
Sep 3
Ren replied to Kirubha Balakumar's discussion IV port for exon 51
"Does Exondys 51 help DMD amenable patients?"
Aug 26
Ren is now a member of PPMD Community
Aug 26
Meera Viswanathan is now a member of PPMD Community
Aug 7
Varun Viswanathan is now a member of PPMD Community
Aug 6

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