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Combine therapies. Combine forces.

Posted by Pat Furlong on December 1, 2014 at 11:35am 2 Comments

This year, I have been awed by the strength of our community. I think 2014 will be known as the year we effected change at every turn in clinical trials, on Capitol Hill, at the FDA, in doctors’ offices. And we did it as a community. Now it’s time to tackle the next challenge.…

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Dysferlin Protein as therapy for MD

Started by wainaina muiruri in Research 13 hours ago. 0 Replies

Swimming

Started by Laurie Paschal in Physical Therapy. Last reply by Lynne Nicholson on Tuesday. 19 Replies

Rycals

Started by Galia Ben Ishay in Research Dec 10. 0 Replies

Translarna

Started by Trinh Nguyen in Research. Last reply by wainaina muiruri Dec 10. 6 Replies

Latest Activity

wainaina muiruri posted a discussion

Dysferlin Protein as therapy for MD

http://musculardystrophynews.com/2014/09/26/restoring-missing-dysferlin-protein-could-serve-as-muscular-dystrophy-therapy/See More
13 hours ago
Profile IconParent Project Muscular Dystrophy via Facebook
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Did you miss our webinar earlier this week? Click below to watch the full presentation and learn more about PPMD’s combination therapies initiative. #givestrength

Combination Therapies Webinar (December 2014)

On Wednesday, December 17th PPMD held a webinar to discuss the therapies that we’re supporting through our year-end campaign. Our speakers provided an overvi...

Facebookyesterday · Reply
Profile IconParent Project Muscular Dystrophy via Facebook
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Early next year, we plan to fund a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne. We need to raise $400,000 before year-end to make that funding possible. The time is now to push that progress forward in a big way. Donate today and your gift will be doubled by a generous match! #givestrength

Now is the time for…

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FacebookThursday · Reply

Staff
Sharon Hesterlee posted a blog post

Now is the time for strength.

We’ve been working toward this moment for years. And the time for action is now.When I started with PPMD in 2009, Pat Furlong and I talked a lot about what it would take to end Duchenne. We knew it wouldn’t be one thing, and we knew it wouldn’t be easy. We believed that only a combination of therapies could address the entire disease within the body.And now we are seeing more progress…See More
Thursday
Profile IconParent Project Muscular Dystrophy via Facebook
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PPMD is excited to announce a collaboration with Solid Ventures (Solid) to engage SRI International in the research and development of the “Solid Suit,” a soft, wearable assistive device for people with Duchenne. The Solid Suit idea evolved from pioneering SRI robotics technology originally designed to offset muscle fatigue and augment muscle strength. PPMD and Solid hope the Solid Suit will enable people with Duchenne to one day use a device in their day-to-day activities that…

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FacebookThursday · Reply
michael stone is attending PPMD's event
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2015 Advocacy Conference at Washington, D.C.

February 22, 2015 to February 24, 2015
Come and advocate for Duchenne directly with Members of Congress. Our annual Advocacy Conference continues to yield results for the Duchenne community.Over the last 14 years our Advocacy has resulted in...A full and promising Duchenne drug development pipeline with nearly 20 potential therapies in clinical testing and several others in earlier stages of development. Over $250 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and…See More
Thursday

Staff
Annie Kennedy posted a blog post

The Solid Suit: Combining Forces to Enhance Strength

(Pictured from left to right: Stanley Nelson, MD, Center for Duchenne Muscular Dystrophy at UCLA, Thomas Sugar, PhD, Arizona State University Polytechnic School, Tom Egan, SRI International, Roy Kornbluh, SRI International, Laura Case, DPT, Duke University School of Medicine, Keith Van Houten, Annie Kennedy, Parent Project…See More
Thursday

Staff
Ryan Fischer posted a blog post

Short online questionnaire on Duchenne and epilepsy.

Sharing this survey from our friends at UPPMD. Please take a moment to fill it out. It is extremely short. News:  short online questionnaire on Duchenne and epilepsy.  Dear parents, boys and young men,  We want to ask your attention for a scientific research project on Duchenne muscular dystrophy and epilepsy. This research…See More
Thursday
David favorited PPMD's blog post Pfizer Initiates Phase 2 Study of PF-06252616 in Duchenne Muscular Dystrophy
Thursday
Profile IconParent Project Muscular Dystrophy via Facebook
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We're hosting a webinar today at 1PM EST to discuss the therapies that we’re supporting through our year-end campaign. We hope you’ll join us!

Webinar: Combination Therapies

community.parentprojectmd.org

PPMD is hosting a webinar on Wednesday, December 17th at 1PM to discuss combination therapies, a group of research projects that, together, we believe will hel…

FacebookWednesday · Reply
Greg and Fran Burdick is attending PPMD's event
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Webinar: Combination Therapies (December 17th - 1 PM EST) at Eastern Time Zone

December 17, 2014 from 1pm to 2pm
PPMD is hosting a webinar on Wednesday, December 17th at 1PM EST to discuss combination therapies -- a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne. As you know, combination therapies are the focus of PPMD’s annual holiday campaign. December 17th, 1PM ESTSpeakers:Sharon Hesterlee, PhD, PPMD’s Vice President, ResearchH. Lee Sweeney, PhD, PPMD’s Senior…See More
Wednesday
Profile IconParent Project Muscular Dystrophy via Facebook
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We are enthusiastic about the potential for myostatin inhibitors to stimulate increases in muscle mass and strength for people living with Duchenne. This approach could potentially add an important angle in our fight against this disease and we are pleased to see the time and great care that Pfizer has expended on its development. Our Duchenne community is proud to have the extraordinary passion and expertise of the Pfizer team fighting with us!…

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FacebookWednesday · Reply

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PPMD posted blog posts
Wednesday
Profile IconParent Project Muscular Dystrophy via Facebook
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The Senate has passed the ABLE Act! Now to the President to be Signed into Law! Thanks to all members of the PPMD community who reached out to your elected officials to help make this day possible! Watch for more details about ABLE Act implementation through PPMD's community site and Facebook page as they become available in early 2015. Learn more about the significance of the ABLE Act for the #Duchenne community:…

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FacebookWednesday · Reply
Profile IconCHRISTINE PHIPPS and Efrat Eliani Russak joined PPMD Community
Wednesday
Lynne Nicholson replied to Laurie Paschal's discussion Swimming
"Have sent you an email. Thanks!"
Tuesday
 
 
 

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