My son is almost 14.5 and is still walking unassisted and even climbing stairs. I never thought when he was diagnosed at 5 that he would still be walking at 14. I guess I am feeling anxious about it. When did your child stop walking? How "normal" is this to still be so mobile at 14? How will I know when he is going to stop walking and need a wheelchair? See More
"Hi! My son is 3 and was just diagnosed with DMD. He has a duplication of exon 2. He is still walking and not showing any signs/symptoms. Thankfully! My brother had DMD and so I pushed for testing recently. Our…"
"Hi. My son Luc is 5 years old and here in Australia he has started prep. He loves going to school but he struggles to concentrate and he also struggles emotionally. My little gentle boy has started to hit and scratch people, He has a very short fuse…"
My son has been in phase 3 - double blind and phase 3-extension. I guess he was in placebo group in phase 3 due to his decline. But since phase 3-extension (all take drug), the decline seems slow down, he almost does not fall.