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james asc is now a member of PPMD Community

Sep 14

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Kanchan Kamini is now a member of PPMD Community

Sep 7

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Claudia Alba posted a blog post

CFAH's Review of the Benefits of CBD for Muscular Dystrophy

As a passionate advocate for safe, effective natural treatments, I often receive questions from readers about which CFAH sites are reliable sources for CBD information, education, and reviews. After my own research on CBD reviews and ratings, I have determined that there are only a handful of such sources online that provide objective, scientific information. But in spite of this limited pool of CFAH sources, I've discovered many useful resources to help make sense of this ever-changing and…See More

Aug 31

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Claudia Alba and Lilly Rogers joined PPMD Community

Aug 30

annesmith and Megan joined PPMD Community

Aug 20

Paras Patel is now a member of PPMD Community

Jul 23

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Theresa Blake posted a discussion

Muscle twitches/body spasms

Anyone else with DMD experiencing whole body muscle twitching/spasms that are uncontrollable? Our son has had them and very scary because we don't know what to do or how to handle it. I know it is probably the muscles getting weaker but if anyone else has this please give some advice. See More

Jul 20

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M Dak joined MicahsDaddy's group

California Families

This group is for families living in CA.

Jul 18

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Madison Clarey, Stella Abud and Greg Berg joined PPMD Community

Jun 29

Adam J Herrmann is now a member of PPMD Community

May 22

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Danielle Dwiggins joined Lisa Jones's group

Illinois/Missouri Families

This group is for families from Illinois and Missouri

May 21

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Danielle Dwiggins is now a member of PPMD Community

May 21

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Tania posted a discussion

Deflazacort versus Prednisone

Hi, my 5 year old son was recently diagnosed with Duchenne. We are due to start him on Deflazacort next week. We also have the option of giving him Prednisone instead. What would you recommend?

May 10

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Tania is now a member of PPMD Community

May 7

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Katie Chase is now a member of PPMD Community

Apr 14

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M Dak replied to Eddy Rivera's discussion My son has Duchenne, be appropriate to give Creatine? Thank you for your answer

"Hi Eddy, did you get any more information on this? We too are thinking of doing this. Creatine seems to be a myostatin inhibitor. Our son was in a clinical trial for myostatin inhibitor "Anti-Myostatin Adnectin…"

Mar 28