"Lori are you on Facebook? I recently joined a FB Group called DMD Manifesting Carriers that is very active. I've learned a lot and they are very supportive."
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Manifesting carriers
My son and I have deletion of 10-16. I am symptomatic. Not sure what to do. I have always been very active. After my son was born I started to experience exercise intolerance in 2003. I work as a nurse and am terrified of not being able to work. Anyone with similar situation? I live in Kalispell Montana.
Outliers - Intermediate between Duchenne & Becker MD
The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Discussions
Manifesting carriers
Started by Lori in Research. Last reply by Karen Gabel 32 minutes ago. 1 Reply 0 Favorites
Experience of living with DMD
Started by Averill Finn in Accessibility and Disability Issues Nov 8, 2019. 0 Replies 0 Favorites
FDA: Approve Vyondys 53 (Golodirsen) for the treatment of Duchenne Muscular Dystrophy
Started by Jacob Hill in Advocacy Sep 20, 2019. 0 Replies 0 Favorites
IV port for exon 51
Started by Kirubha Balakumar in General Discussion. Last reply by Ren Aug 26, 2019. 4 Replies 0 Favorites
Wait four months to join clinic trial or start with prednisone now
Started by Tao Wang in Steroids. Last reply by Shawn Jun 27, 2019. 3 Replies 0 Favorites
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Featured Blog
PPMD Designates UC Davis a Certified Duchenne Care Center
Posted by PPMD on April 6, 2017 at 12:30pm 0 Comments 0 Favorites
Today Parent Project Muscular Dystrophy (PPMD) named UC Davis Department of Physical Medicine and Rehabilitation Neuromuscular Disease Clinic (UC Davis) our 15th …
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