Today, my sons are dancing! Today we ALL celebrate the first FDA approval in Duchenne. Today the FDA approved Exondys 51 (aka eteplirsen) injection, specifically indicated for patients…Continue
On the heels of our first FDA drug approval in Duchenne earlier this week, today we celebrate PPMD’s 9th Annual Coach To Cure MD! 🏈 This incredible program continues to grow and continues to raise money and awareness for Duchenne…all thanks to great teammates like YOU! Nearly every televised game around the country will have coaches wearing CTC armbands, tweeting about Duchenne, and encouraging fans to text a donation. With over 500 universities participating, we…See More
Tomorrow we celebrate the 9th Annual Coach To Cure MD! 🏈 Nearly every televised game around the country will have coaches wearing CTC armbands, tweeting about Duchenne, and encouraging fans to text a donation to help us #TackleDuchenne. Check out the full listing of televised games sporting our patches!
Check out this NCAAF Schedule, sortable by date and…See More
Tommy visited the University at Buffalo for a practice in anticipation of Coach To Cure MD this weekend! The University put together this package to highlight Duchenne and the amazing time he had with the team. The team surprised the family with an autographed football and let Tommy and his sister participate in the post-practice stretches. They even crafted a play just for Tommy where he could score a touchdown! Thank you UB Bulls Football for making Tommy's day and helping us…See More
Webinar: SareptAssist Patient Services Overview
Please join Parent Project Muscular Dystrophy and Sarepta Therapeutics, Inc., as we host an informational webinar on Monday, September 26th at 1pm ET about SareptAssist, Sarepta's patient support program. To learn more visit www.SareptAssist.com. Speakers: - Pat Furlong, Parent Project Muscular Dystrophy -…See More